Empirically Supported Treatment (EST) Bibliography
Compiled by Anthony Spirito, Ph.D., Terry Stancin, Ph.D., and Kathy Zebracki, M.A.
I. Disease Related Pain (Lynnda M. Dahlquist, Katia Jones, & Kris McKenna)
Gil, K. M., Anthony, K. K., Carson, J. W., Redding-Lallinger, R., Daeschner, C. W., & Ware, R. E. (2001). Daily coping practice predicts treatment effects in children with sickle cell disease. Journal of Pediatric Psychology, 26(3), 163-173.
Gil, K. M.,
Lallinger, R., & Daeschner, C. W. (1997). Cognitive coping skills training in children with sickle cell disease. International Journal of Behavioral Medicine, 4, 364-377.
II. Encopresis (Patrick Friman)
Smith, L., Smith, P., & Lee, S. K. (2000). Behavioral treatment of urinary incontinence
and encopresis in children with learning disabilities: Transfer of stimulus control. Developmental Medicine and Child Neurology, 42(4), 27.
III. Enuresis (Patrick Friman)
El-Anany, F.G., Maghraby, H. A., Shaker, S. E., & Abdel-Moneim, A. M. (1999).
Primary nocturnal enuresis: A new approach to conditioning treatment. Urology, 53, 405-408; discussion 408-409.
Pretlow, R. A. (1999). Treatment of nocturnal enuresis with an ultrasound bladder
volume controlled alarm device. Journal of Urology, 162, 1224-1228.
Smith, L., Smith, P., Lee, S. K. (2000). Behavioral treatment of urinary incontinence and
encopresis in children with learning disabilities: transfer of stimulus control. Developmental Medicine and Child Neurology, 42(4), 27.
IV. Headache (Nicholas Long)
Barry, J., & Von Baeyer, C. L. (1997). Brief cognitive-behavioral group treatment for
children’s headache. The Clinical Journal of Pain, 13, 215-220.
Scharff, L., Marcus, D. A., & Masek, B. J. (2002). A controlled study of minimal-contact
thermal biofeedback treatment in children with migraine. Journal of Pediatric Psychology, 27(2), 109-119.
V. Obesity (ElissaJelalian/Janelle Krishnamoorthy)
Braet, C., & Van Winckel, M. (2000). Long-term follow-up of a cognitive behavioral treatment
program for obese children. Behavior Therapy, 31, 55.
Braet, C., Van Winckel, M., & Van Leeuwen, K. (1997). Follow-up results of different treatment
programs for obese children. Acta Paediatrica, 86, 397-402.
adjunct to a behavioral intervention for childhood obesity: A research note.
Journal of Child Psychology and Psychiatry, 34, 1043-1050.
Epstein, L. H., Gordy, C. C., Raynor, H. A., Beddome, M., Kilanowski, C. K., & Paluch,
R. (2001). Increasing fruit and vegetable intake and decreasing fat and sugar intake in families at risk for childhood obesity. Obesity Research, 9(3), 171-8.
behaviors in treating pediatric obesity. Archives of Pediatric and Adolescent Medicine, 154, 220-226.
solving in the treatment of childhood obesity. Journal of Consulting and Clinical
Psychology, 68(4), 717-721.
Figueroa-Colon, R., Mayo, M. S., Aldridge, R. A., Winder, T., & Weinsier, R. L. (1998).
Body composition changes in Caucasian and African American children and
adolescents with obesity using dual-energy x-ray absorptiometry measurements after a 10-week weight loss program. Obesity Research, 6(5), 326-331.
Gately, P. J., Cooke, C. B., Butterly, R. J., Mackreth, P., & Carroll, S. (2000). The
effects of a children's summer camp programs on weight loss, with a 10 month follow-up. International Journal of Obesity, 24, 1445-1452.
of physical training and its cessation on percent fat and bone density of children
with obesity. Obesity Research, 7(2), 208-214.
Myers, M. D., Raynor, H. A., & Epstein, L. H. (1998). Predictors of child psychological
changes during family-based treatment for obesity. Archives of Pediatrics and
Adolescent Medicine, 152, 855-861.
Nuutinen, O. & Knip, M. (1992a). Predictors of weight reduction in obese children. European Journal of Clinical Nutrition, 46, 785-794.
Nuutinen, O. & Knip, M. (1992b). Weight loss, body composition and risk factors for
disease in obese children: Long-term effects of two treatment strategies. Journal of the
Intervention program for obese school children. Journal of Community Health Nursing, 9, 183-190.
obesity. Archives of Pediatric and Adolescent Medicine, 154, 947-951.
the eating behavior of African-American mothers and daughters. Health Education and Behavior, 24, 152-164.
VI. Procedure - Related Pain (Lynnda M. Dahlquist/Katia Jones & Kris McKenna)
Bauchner, H. & Vinci, R. (1996). Parents and procedures: A randomized control trial. Pediatrics, 98, 861-867.
Carlson, K. L., Broome, M., & Vessey, J. A. (2000). Using distraction to reduce reported pain, fear, and behavioral distress in children and adolescents: A multi-site study. Journal for the Society of Pediatric Nursing, 5, 75-85.
Chen, E., Craske, M.G., Katz, E.R., Schwartz, B.A., & Zeltzer, L.K. (2000). Pain-sensitive temperament: Does it predict procedural distress and response to psychological treatment among children with cancer? Journal of Pediatric Psychology, 25, 269-278.
Cohen, L. L, Blount, R. L., Cohen, R. J., Ball, C. M., McClellan, C. B., & Bernhard, R. S. (2001). Children’s expectations and memories of acute distress: short- and long-term efficacy of pain management interventions. Journal of Pediatric Psychology, 26, 367-374.
Cohen, L. L., Blount R. L., Cohen R. J., Schaen, E. R., & Zaff, J. F. (1999). Comparative study of distraction versus topical anesthesia for pediatric pain management during immunizations. Health Psychology, 18, 591-598.
Dahlquist, L. M., Busby, S. M., Slifer, K. J., Tucker, C. L., Eischen, S., Hilley, L. et. al. (2002). Distraction for children of different ages who undergo repeated needle sticks. Journal of Pediatric Oncology Nursing, 19, 22-34.
Dahlquist, L., Pendley, J., Landthrip, D., Jones, C., & Steuber, C. P. (2002). Distraction intervention for preschoolers undergoing intramuscular injections and subcutaneous port access. Health Psychology, 21, 94-99.
Fanurik, D., Koh, J. L & Schmitz, M. L. (2000). Distraction techniques combined with EMLA: Effects on IV insertion pain and distress in children. Children’s Health Care, 2, 87-102.
Koh, J. L., Fanurik, D., Stoner, J., Schmitz, M. L., & Von Lanthen, M. (1999). Efficacy
of parental application of eutectic mixture of local anesthetics for intravenous insertion. Pediatrics, 103, 1-5.
Lal, M. K., McClelland, J., Phillips, J., Taub, N. A., and Beattie, R. M. (2001). Comparison of EMLA cream versus placebo in children receiving distraction therapy for venepuncture. Acta Paediatrica, 90, 154-159.
Manimala, M. R., Blount, R. L., & Cohen, L. L. (2000). The effects of parental reassurance versus distraction on child distress and coping during immunizations. Children’s Health Care, 29, 161-177.
Manne, S., Bakeman, R., Jacobsen, P., Gorfinkle, K., & Redd, W. H. (1994). An
analysis of an intervention to reduce children’s distress during venipuncture. Health Psychology, 13, 556-566.
Mason, S., Johnson, M. H., & Wooley, C. (1999). A comparison of distractors for controlling distress in young children during medical procedures. Journal of Clinical Psychology in Medical Settings, 6, 239-248.
Peretz, B. & Gluck, G.M. (1999). Assessing an active distracting technique for local anesthetic injection in pediatric dental patients: repeated deep breathing and blowing out air. The Journal of Clinical Pediatric Dentistry, 24, 5-8.
Pringle, B., Hilley, L., Gelfand, K., Dahlquist, L. M., Switkin, M., Diver, T. et al. (2001). Decreasing child distress during needle sticks and maintaining treatment gains over time. Journal of Clinical Psychology in Medical Settings, 8, 119-130.
Reeb, R. N., & Bush, J. P. (1996). Preprocedural psychological preparation in pediatric oncology: A process-oriented intervention study. Children’s Health Care, 25, 265-279.
Slifer, K., Eischen, S., Tucker, C., Dahlquist, L. M., Busby, S., Sulc, W. et al. (2002). Behavioral treatment for child distress during repeated needle sticks. Behavioral and Cognitive Psychotherapy, 30, 83-94.
Smith, J. T., Barabasz, A., & Barabasz, M. (1996). Comparison of hypnosis and distraction in severely ill children undergoing painful medical procedures. Journal of Consulting and Clinical Psychology, 42, 187-195.
Vessey, J. A., Carlson, K. A., & McGill, J. (1994). Use of distraction with children during an acute pain experience. Nursing Research, 43, 369-372.
Zelikovsky, N., Rodrigue, J.R.,
behavioral and behavioral interventions help young children cope during a voiding cystourethrogram. Journal of Pediatric Psychology, 25, 535-543.
VII. Recurrent Abdominal Pain (Gerard Banez/Heather Gallagher)
Anbar, R. D. (2001). Self-hypnosis for treatment of functional abdominal pain in
childhood. Clinical Pediatrics, 40, 447-451.
Humphreys. P. A., & Gevirtz, R. N. (2000). Treatment of recurrent abdominal pain:
Components analysis of four treatment protocols. Journal of Pediatric Gastroenterology and Nutrition, 31, 47-51.
VIII. Severe Feeding Problems (MaryLouise E. Kerwin/Diane Cassidy
Ahearn, W. H. (in press). Effect of two methods of introducing foods during feeding treatment on acceptance of previously rejected items. Behavioral Interventions.
Ahearn, W. H., Castine, T., Nault, K., & Green, G. (2001). An Assessment of Food Acceptance in Children with Autism or Pervasive Developmental Disorder- Not Otherwise Specified. Journal of Autism and Developmental Disorders, 31, 505-512.
Ahearn, W. H., Kerwin, M. E., Eicher, P. S., & Lukens, C. T. (2001). An ABAC comparison of two intensive interventions for food refusal. Behavior Modification, 25, 385-405.
Babbitt, R. L., Shore, B. A., Smith, M., Williams, K. E., & Coe, D. A. (2001). Stimulus fading in the treatment of adipsia. Behavioral Interventions, 16, 197-207.
Benoit, D. & Coolbear, J. (1998). Post-traumatic feeding disorders in infancy: Behaviors predicting treatment outcome. Infant Mental Health Journal, 19, 409-421.
Benoit, D., Wang, E. E., & Zlotkin, S. H. (2000). Discontinuation of enterostomy tube feeding by behavioral treatment in early childhood: a randomized controlled trial. Journal of Pediatrics, 4, 498-503.
Cooper, L. J., Wacker, D. P., Brown, K., McComas, J. J., Peck, S. M., Drew, J., et al. (1999). Use of concurrent operants paradigm to evaluate positive reinforcers during treatment of food refusal. Behavior Modification, 23, 3-40.
Denny, M., Marchand-Martella, N., Martella, R. C., Reilly, J. R., Reilly, J. F., & Cleanthous, C. C. (2000). Using parent-delivered graduated guidance to teach functional leving skills to a child with Cri du Chat syndome. Education and Treatment of Children, 23, 441-454.
Didden, R., Seys, D., & Schouwink, D. (1999). Treatment of chronic food refusal in a young developmentally disabled child. Behavioral Interventions, 14, 213-222.
Douglas, J., & Harris, B. (2001). Description and evaluation of a day-centre-based behavioural feeding programme for young children and their parents. Clinical Child Psychology, 6, 241-256.
Farrell, D. A., Hagopian, L. P., & Kurtz, P. F. (2001). A hospital-and home-based behavioral intervention for a child with chronic food refusal and gastrostomy tube dependence. Journal of Developmental & Physical Disabilities, 13, 407-418.
Freeman, K. A., & Piazza, C. C. (1998). Combining stimulus fading, reinforcement, and extinction to treat food refusal. Journal of Applied Behavior Analysis, 31, 691-694.
Galensky, T. L., Miltenberg, R. G., Stricker, J. M., & Garlinghouse, M. A. (2001). Functional assessment and treatment of mealtime behavior problems. Journal of Positive Behavior Intervention, 3, 211-224.
Gutentag, S., & Hammer, D. (2000). Shaping oral feeding in a gastronomy tube-dependent child in natural settings. Behavior Modification, 24, 395-410.
Hoch, T. A., Babbitt, R. L., Farrar-Schneider, D., Berkowitz, M. J., Owens, J. C., Knight, T. L., et al. (2001). Empirical examination of a multicomponent treatment for pediatric food refusal. Education & Treatment of Children, 24, 176-198.
Kahng, S. W., Tarbox, J., & Wilke, A. E. (2001). Use of multicomponent treatment for food refusal. Journal of Applied Behavior Analysis, 34, 93-96.
Kelley, M. E., Piazza, C. C., Fisher, W. W., & Oberdorff, A. J. (in press). Acquisition of cup drinking using previously refused foods as positive and negative reinforcement. Journal of Applied Behavior Analysis.
Luiselli, J. K. (2000). Cueing, demand fading, and positive reinforcement to establish self-feeding and oral consumption in a child with chronic food refusal. Behavior Modification, 24, 348-358.
O’Connor, M. E., & Szekely, L. J. (2001). Frequent breastfeeding and food refusal associated with failure to thrive. Clinical Pediatrics, 40, 27-33.
O’Reilly, M. F., & Lancioni, G. E. (2001). Treating food refusal in a child with Williams syndrome using the parent as therapist in the home setting. Journal of Intellectual Disability Research, 45, 41-46.
Patel, M. R., Piazza, C. C., Kelly, M. L., Ochsner, C. A., & Santana, C. M. (2001). Using a fading procedure to increase fluid consumption in a child with feeding problems. Journal of Applied Behavior Analysis, 34, 357-360.
Patel, M.R., Piazza, C. C., Martinez, C. J., Volkert, V. M., & Santana, C. M. (in press). An evaluation of two differential reinforcement procedures with escape extinction to treat food refusal. Journal of Applied Behavior Analysis.
Patel, M. R., Piazza, C. C., Santana, C. M., & Volkert, V. M. (in press). An evaluation of food type and texture in the treatment of a feeding problem. Journal of Applied Behavior Analysis.
Piazza, C. C., Fisher, W. W., Brown, K. A., Shore, B. A., Katz, R. M., Sevin, B. M., et al. (in press). Functional analysis of inappropriate mealtime behaviors. Journal of Applied Behavior Analysis.
Piazza, C. C., Patel, M. R., Santana, C. M., Goh, H., Delia, M. D., & Lancaster, B. M. (in press). An evaluation of simultaneous and sequential presentation of preferred and nonpreferred food to treat food selectivity. Journal of Applied Behavior Analysis.
Pinnington, L., & Hegarty, J. (1999). Effects of consistent food presentation on efficiency of eating and nutritive value of food consumed by children with severe neurological impairment. Dysphagia, 14, 17-26.
Randall, J., Masalsky, C. J., & Luiselli, J. K. (2002). Behavioral intervention to increase oral food consumption in an adult with multiple disability and gastrostomy tube supplementation. Journal of Intellectual and Developmental Disability, 27, 5-13.
Sevin, B. M., Gulotta, C. S., Sierp, B. J., Rosica, L. A., & Miller, L. J. (2002). Analysis of response covariation among multiple topographies of food refusal. Journal of Applied Behavior Analysis, 35, 65-68.
Shore, B. A., Babbitt, R. L., Williams, K. E., Coe, D. A., & Snyder, A. (1998). Use of texture fading in the treatment of food selectivity. Journal of Applied Behavior Analysis, 31, 621-633.
Shore, B.A., LeBlanc, D., & Simmons, J. (1999). Reduction of unsafe eating in a patient with esophageal stricture. Journal of Applied Behavior Analysis, 32, 225-228.
Stein, M. T., & Robinson, J. R. (2000). Feeding problems, sleep disturbances, and negative behaviors in a toddler. Journal of Developmental & Behavioral Pediatrics, 21, 351-355.
Werle, M. A., Murphy, T. B., & Budd, K. S. (1998). Broadening the parameters of
investigation in treating young children’s chronic food refusal. Behavior Therapy, 29, 87-105.
IX. Sleep (Jodi Mindell/Lisa Meltzer)
Borkowski, M.M., Hunter, K.E., Johnson, C.M (2001). White noise and scheduled
bedtime routines to reduce infant and childhood sleep disturbances. Behavior Therapist, 24(2), 29-37.
Hiscock, H. & Wake, M. (2002). Randomised controlled trial of behavioural infant sleep
intervention to improve infant sleep and maternal mood. British Medical Journal,
Reid, M.J., Walter, A.L., O'Leary, S.G. (1999). Treatment of young children's bedtime
refusal and nighttime wakings: A comparison of "standard" and graduated ignoring procedures. Journal of Abnormal Child Psychology, 27(1), 5-16.
A. Asthma (Elizabeth McQuaid/Natalie Walders)
Bonner, S., Zimmerman, B. J., Evans, D., Irigoyen, M., Resnick, D., & Mellins, R. B.
(2002). An individualized intervention to improve asthma management among urban Latino and African-American families. Journal of Asthma, 39, 167 – 179.
Bartholomew, L. K., Gold,
R. S., Parcel, G. S., Czyzewski,
Fernandez, M. et al. (2000). Watch, Discover, Think and Act: evaluation of computer-assisted instruction to improve asthma self-management in inner-city children. Patient Education and Counseling, 39, 269-280.
Bratton, D. L., Price, M., Gavin, L., Glenn, K., Brenner, M., Gelfand, E. W. et al. (2001).
Impact of a multidisciplinary day program on disease and healthcare costs in children and adolescents with severe asthma: A two-year follow-up study. Pediatric Pulmonology, 31, 177 – 189.
Carter, M. C., Perzanowski, M. S., Raymond, A., & Platts-Mills, T. A. (2001). Home
intervention in the treatment of asthma among inner-city children. Journal of Allergy and Clinical Immunology, 108, 732 – 737.
Castes, M., Hagel,
Immunological changes associated with clinical improvement of asthmatic children subjected to psychosocial intervention. Brain, Behavior, and Immunity, 13, 1 – 13.
Delaronde, S. (2002). Using case management to increase antiinflammatory medication
use among a managed care population with asthma. Journal of Asthma, 39, 55 – 63.
Evans, R., Gergen, P. J., Mitchell, H., Kattan, M., Kercsmar, C., Crain, E. et al. (1999). A
randomized clinical trial to reduce asthma morbidity among inner-city children: Results of the National Cooperative Inner-City Asthma Study. Journal of Pediatrics, 135, 332-338.
Greineder, D. K., Loane, K. C., & Parks, P. (1999). A randomized controlled trial of a
pediatric asthma outreach program. Journal of Allergy and Clinical Immunology, 103, 436 - 440.
asthma outcome and self-management behaviors of inner-city children: A randomized trial of the Health Buddy interactive device and asthma diary. Archives of Pediatric and Adolescent Medicine, 156, 114 – 120.
Homer, C., Susskind, O., Alpert, H. R., Owusu, M., Schneider, L., Rappaport, L. A. et al.
(2000). An evaluation of an innovative multimedia educational software program for asthma management: report of a randomized, controlled trial. Pediatrics, 106, 210 – 215.
Hung, C.C., Chen, Y.C., Mao, H.C., & Chiang, B.L. (2002). Effects of systematic
nursing instruction of mothers on using medication and on health status of asthmatic children. Journal of Nursing Research, 10, 22 – 32.
Irvine, L., Crombie, I. K., Clark, R. A., Slane, P. W., Feyerabend, C., Goodman, K. E. et
al. (1999). Advising parents of asthmatic children on passive smoking: randomised controlled trial. British Medical Journal, 318, 1456 – 1459.
Kelly, C. S., Morrow, A. L., Shults, J., Nakas, N., Strope, G. L., & Adelman, R. D.
(2000). Outcomes evaluation of a comprehensive intervention program for asthmatic children enrolled in Medicaid. Pediatrics, 105, 1029 – 1035.
Kinney, P. L, Northridge, M .E., Chew, G. L., Gronning, E., Joseph, E., Correa, J. et al.
the front lines: An environmental asthma intervention in
a comprehensive approach to improving indoor environmental quality for low-income children with asthma. Environmental Health Perspective, 110, 311 – 322.
population-based asthma management program: Quality of life, absenteeism, and utilization. Annals of Allergy, Asthma, & Immunology, 85, 28 – 34.
Lurie, N., Bauer, E.J., & Brady, C. (2001). Asthma outcomes at an inner-city school-
based health center. Journal of School Health, 71, 9 – 16.
Lwebuga-Mukasa, J., & Dunn-Georgiou, E. (2002). A school-based asthma intervention
Effectiveness of and compliance to intervention measures in reducing home dust and cat allergen. Annals of Allergy, Asthma and Immunology, 88, 52 – 58.
Perez, M. G., Feldman, L., & Caballero, F. (1999). Effects of a self-management
educational program for the control of childhood asthma. Patient Education and Counseling, 36, 47 – 55.
Persky, V., Coover, L., Hernandez, E., Contreras, A., Slezak, J., Piorkowski, J. et al.
Stevens, C. A., Wesseldine, L. J., Couriel, J. M., Dyer, A. J., Osman, L. M., & Silverman,
M. (2002). Parental education and guided self-management of asthma wheezing in pre-school child: A randomised controlled trial. Thorax, 57, 39 – 44.
van Es, S. M., Nagelkerke, A. F., Colland, V. T., Scholten, R. J., & Bouter, L. M. (2001).
An intervention programme using the ASE-model aimed at enhancing adherence in adolescents with asthma. Patient Education and Counseling, 44, 193 – 203.
V.T. et al. (2001). Children with asthma and physical exercise: Effects of an exercise programme. Clinical Rehabilitation, 15, 360 – 370.
(2002). Effect of feedback regarding urinary cotinine and brief tailored advice on home smoking restrictions among low-income parents of children with asthma: A controlled trial. Preventive Medicine, 34, 58 – 65.
Wilson, S. R., Yamada, E. G., Sudhakar, R., Roberto, L., Mannino, D., Mejia, C. et al.
(2001). A controlled trial of an environmental tobacco smoke reduction intervention in low-income children with asthma. Chest, 120, 1709 – 1722.
B. Cancer (Vida Tyc/Leslie Throckmorton-Belzer)
Please note that interventions for cancer patients undergoing medical procedures are listed under procedure-related pain.
Golden, W.L., & Gersh, W.D. (1990). Cognitive-behavior therapy in the treatment of
cancer patients. Journal of Rational-Emotive Cognitive-Behavioral Therapy, 8, 41-51.
Heiney, S. P., Ruffin, J., Ettinger, R. S., & Ettinger, S. (1988). The effects of group
therapy on adolescents with cancer. Journal of Pediatric Oncology Nurses, 5, 20-24.
Heiney, S. P., Wells, L. M., Coleman, B., Swygert, E., & Ruffin, J. (1990). Lasting
Impressions: A psychosocial support program for adolescents with cancer and their parents. Cancer Nursing, 13, 13-20.
Jacknow, D. S., Tschann, J. M., Link, M. P., Boyce, W. T. (1994). Hypnosis in the
prevention of chemotherapy-related nausea and vomiting in children: a prospective study. Journal of Developmental Behavioral Pediatrics, 15, 258-264.
Kazak, A. E., Simms, S., Barakat, L., Hobbie, W., Foley, B., Golomb, V. et al. (1999).
Surviving Cancer Competently Intervention program (SCCIP): A cognitive-behavioral and family therapy intervention for adolescent survivors of childhood cancer and their families. Family Process, 38, 175-191.
Krietemeyer, B. C., & Heiney, S. P. (1992). Storytelling as a therapeutic technique in a
group for school-aged oncology patients. Children’s Health Care, 21, 14-20.
Liossi, C., & Hatira, P. (1999). Clinical hypnosis versus cognitive behavioral training
for pain management with pediatric cancer patients undergoing bone marrow aspirations. International Journal of Clinical and Experimental Hypnosis, 47 (2), 104-116.
Redd, R. N.,& Bush, J. P. (1996). Preprocedural psychological preparation in pediatric
oncology: a process-oriented intervention study. Children’s Health Care, 25, 265-279.
Robb, S.L. (2000). The effect of therapeutic music interventions on the behavior of
hospitalized children in isolation: Developing a contextual support model of music therapy. Journal of Music Therapy, 37, (2), 118-146.
Schneider, S.M. & Workman, M.L. (1999). Effects of virtual reality on symptom
distress in children receiving chemotherapy. CyberPsychology & Behavior, 2 (2), 125-134.
Stuber, M., Gonzalez, S., Benjamin, H., & Golant, M. (1995). Fighting for recovery:
Group interventions for adolescents with cancer and their parents. Journal of Psychotherapy Practice and Research, 4, 286-296.
C. Cardiology (Alan Delamater)
Intervention for congenital heart disease:
Intervention for hypercholesterolemia:
Obzarzanedk, E., Kimm, S., Barton, B., Van Horn, L., Kwiterovich, P., Simons-Morton, D., et al. (2001). Long-term safety and efficacy of a cholesterol-lowering diet in children with elevated low-density lipoprotein cholesterol: Seven-year results of the Dietary Intervention Study in Children. Pediatrics 107, 256-264.
Tonstad, S., Novik, T.S., & Vandvik, I.H. (1996). Psychosocial function during treatment
for familial hyperchoesterolemia. Pediatrics, 98, 249-255.
D. Cystic Fibrosis (Scott Powers/Susana Patton, with help from Molly Heidemann, & Racquel Henry)
Bartholomew, L. K., Czyzewski,
Mariotto, M. J. et al. (1997). Self-management of cystic fibrosis: Short-term outcomes of the Cystic Fibrosis Family Education Program. Health Education and Behavior, 24, 652-666.
Cheuvront, B., Sorenson, J. R., Callanan, N. P., Stearns, S. C., & DeVellis, B. M. (1998).
Psychosocial and educational outcomes associated with home- and clinic-based pretest education and cystic fibrosis carrier testing among a population of at-risk relatives. American Journal of Medical Genetics, 75(5), 461-468.
de Jong, P. T., Grevink, R. G., Roorda, R. J., Kaptein, A. A., & van der Schans, G. P.
(1994). Effect of a home exercise training program in patients with cystic fibrosis. Chest, 5, 463-468.
Delk, K. K., Gevirtz, R., Hicks, D. A., Carden, F., & Rucker, R. (1994). The effects of
biofeedback assisted breathing retraining on lung functions in patients with cystic fibrosis. Chest, 105(1), 23-28.
Goldbeck, L., & Babka, C. (2001). Development and evaluation of a multi-family
psychoeducational program for cystic fibrosis. Patient Education & Counseling, 44(2), 187-192.
Grasso, M. C., Button, B. M., Allison, D. J., & Sawyer, S. M. (2000). Benefits of music
therapy as an adjunct to chest physiotherapy in infants and toddlers with cystic fibrosis. Pediatric Pulmonology, 29(5), 371-381.
Gulmans, V. A., de Meer, K., Brackel, H. J., Faber, J. A., Berger, R., & Helders, P. J.
(1999). Outpatient exercise training in children with cystic fibrosis: physiological effects, perceived competence, and acceptability. Pediatric Pulmonology, 28(1), 39-46.
Hains, A., Behrens, D., Biller, J., & Davies, W. (1997). Cognitive behavioral
interventions for adolescents with cystic fibrosis. Journal of Pediatric Psychology, 22(5), 669-687.
Hernandez-Reif, M., Field, T., Krasnegor, J.,
Mavunda, K. (1999). Children with cystic fibrosis benefit from massage therapy. Journal of Pediatric Psychology, 24(2), 175-181.
Ireys, H. T., Chernoff, R., DeVet, K. A., & Kim, Y. (2001). Maternal outcomes of a
randomized controlled trial of a community-based support program for families of children with chronic illnesses. Archives of Pediatric and Adolescent Medicine, 155(7), 771-777.
McIlwaine, P. M., Wong, L. T., Peacock, D., & Davidson, A. G. (2001). Long-term
comparative trial of positive expiratory pressure versus oscillating positive expiratory pressure (flutter) physiotherapy in the treatment of cystic fibrosis. Journal of Pediatrics, 138(6), 845-850.
Quan, J. M., Tiddens, H. A., Sy, J. P., McKenzie, S.G., Montgomery, M. D., Robinson,
P. J., et al. (2001). The Pulmozyme Early Intervention Trial Study Group. A two-year randomized, placebo-controlled trial of dornase alfa in young patients with cystic fibrosis with mild lung function abnormalities. Journal of Pediatrics, 139(6), 813-820.
Quittner, A. L., & Buu, A. (2002). Effects of tobramycin solution for inhalation on
global ratings of quality of life in patients with cystic fibrosis and pseudomonas aeruginosa infection. Pediatric Pulmonology, 33(4), 269-276.
Schneiderman-Walker, J., Pollock,
S. L., Corey, M., Wilkes,
L. et al. (2000). A randomized controlled trial of a 3-year home exercise program in cystic fibrosis. Journal of Pediatrics, 136(3), 304-310.
Selvadurai, H. C., Blimkie, C. J., Meyers, N., Mellis, C. M., Cooper, P. J., & Van
Asperen, P. P. (2002). Randomized controlled study of in-hospital exercise training programs in children with cystic fibrosis. Pediatric Pulmonology, 33(3), 194-200.
Stark, L. J., Opripari, L.C., Spieth, L.E., Jelalian, E., Quitner, A.Q., Higgins, L.,
Mackner, L., Byars, K., Lapey, A., Stallings, V.A., & Duggan, C. (in press).
Contribution of behavior therapy to nutrition adherence in cystic
fibrosis: A two-year randomized controlled study. Behavior Therapy
Wolter, J. M., Bowler, S. D., Nolan, P. J., & McCormack, J. G. (1997). Home
intravenous therapy in cystic fibrosis: A prospective randomized trial examining clinical, quality of life and cost aspects. European Respiratory Journal, 10, 896-900.
Addendum (Medication Trials):
Bucuvalas, J. C., Chernausek, S. D., Alfaro, M. P., Krug, S. K., Ritschel, W., & Wilmott,
R. W. (2001). Effect of insulinlike growth factor-1 treatment in children with cystic fibrosis. Journal of Pediatric Gastroenterology & Nutrition, 33(5), 576-581.
Campbell, P. W.
of persistent growth impairment after alternate-day prednisone treatment in
children with cystic fibrosis.
Furuya, M. E., Lezana-Fernandez, J. L., Vargas, M. H., Hernandez-Sierra, J. F., &
Ramirez-Figueroa, J. L. (2001). Efficacy of human recombinant DNase in pediatric patients with cystic fibrosis. Archives of Medical Research, 32(1), 30-34.
Hardin, D. S., Ellis, K. J., Dyson, M., Rice. J., McConnell, R., & Seilheimer, D. K.
(2001). Growth hormone improves clinical status in prepubertal children with cystic fibrosis: Results of a randomized controlled trial. Journal of Pediatrics, 139(5), 636-642.
Hutler, M., Schnabel, D., Staab, D., Tacke, A., Wahn, U. & Boning, D. (2002).
Effect of growth hormone on exercise tolerance in children with cystic fibrosis. Medicine & Science in Sports & Exercise, 34(4), 567-572.
Konstan, M. W., Byard, P. J., Hoppel, C. L., & Davis, P. B. (1995). Effect of high-dose
in patients with cystic fibrosis.
Lai, H. C., FitzSimmons, S. C., Allen, D. B., Kosorok, M. R., Rosenstein, B. J., &
prednisone treatment in children with cystic fibrosis.
Marchand, V., Baker, S. S., Stark, T. J., & Baker, R. D. (2000). Randomized, double-
blind, placebo-controlled pilot trial of megestrol acetate in malnourished children with cystic fibrosis. Journal of Pediatric Gastroenterology Nutrition, 31(3), 264-269.
Moss, R. B. (2002). Long-term benefits of inhaled tobramycin in adolescent
with cystic fibrosis. Chest, 121(1), 55-63.
Pike, S. E., Prasad, S. A., & Balfour-Lynn,
on exercise tolerance (3-min step test) in cystic fibrosis. Pediatric Pulmonology, 32(1), 38-43.
Ramsey, B. W., Pepe, M. S., Quan, J. M., Otto, K. L., Montgomery, A. B., Williams-
Warren, J. et al. (1999). Intermittent administration of inhaled tobramycin in
patients with cystic fibrosis. Cystic Fibrosis Inhaled Tobramycin Study Group.
Steinkamp, G., Demmelmair,
(2000). Energy supplements rich in linoleic acid improve body weight and essential fatty acid status of cystic fibrosis patients. Journal of Pediatric Gastroenterology Nutrition, 31(4), 418-23.
Suri, R., Metcalfe, C., Lees, B., Grieve, R., Flather, M., Normand, C. et al. (2001).
Comparison of hypertonic saline and alternate-day or daily recombinant human deoxyribonuclease in children with cystic fibrosis: a randomized trial. Lancet, 358(9290), 1316-1321.
E. Diabetes (Alan Delamater)
Ceccoli, V. C. (1992). Developing group treatment for a pediatric diabetic population:
Grey, M., Boland, E. A., Davidson, M., Yu, C., & Tamborlane, W. V. (1999). Coping
skills training for youths with diabetes on intensive therapy. Applied Nursing Research, 12, 3-12.
Adjustment to misfortune: The use of a social support group for adolescent diabetics. Pediatric and Adolescent Endocrinology, 10, 213-218.
Nathan, S. W., & Goetz, P. (1984). Psychosocial aspects of chronic illness: Group
interactions in diabetic girls. Children’s Health Care, 13, 24-29.
Pichert, J. W., Murkin, S. A., Snyder, G. M., Boswell, E. J., & Kinzer, C. K. (1993).
Problem-based diabetes education using a video anchor. Diabetes Spectrum, 6, 160-164.
Pichert, J.W., Smeltzer, C., Snyder, G. M., Gregory, R. P., Smeltzer, R., & Kinzer, C. K.
(1994). Traditional vs. anchored instruction for diabetes-related nutritional
knowledge, skills, and behavior. The Diabetes Educator, 20, 45-48.
Pichert, J. W., Snyder, G. M., Kinzer, C. K., & Boswell, E. J. (1994). Problem solving
anchored instruction about sick days for adolescents with diabetes. Patient
Education and Counseling, 23, 115-124.
Schlundt, D. G., Rea, M., Hodge, M., Flannery, M. E., Kline, S., Meek, J. et al. (1996).
Assessing and overcoming situational obstacles to dietary adherence in adolescents with IDDM. Journal of Adolescent Health, 19, 282-288.
approach to the management of diabetes in adolescents and young adults. Diabetes Care, 4, 620-623.
Wysocki, T., Harris, M. A., Greco, P., Bubb, J., Danda, C.E., Harvey, L.M. et al. (2000).
Randomized, controlled trial of behavior therapy for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology, 25, 23-33.
Wysocki, T., Harris, M. A., Greco, P., Harvey, L. M., McDonell, K., Danda, C.L.E. et al.
(1997). Social validity of support group and behavior therapy interventions for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology, 22, 635-649.
Wysocki, T., Miller, K. M., Greco, P., Harris, M. A., Harvey, L. M., Taylor, A. et al.
(1999). Behavior therapy for families of adolescents with diabetes: Effects on directly observed family interactions. Behavior Therapy, 30, 507-525.
therapy for families of adolescents with diabetes: maintain treatment effects. Diabetes Care, 24, (3), 441-446.
F. HIV (Celia Lescano/Kristie Puster)
Bacha, R., Pomeroy, E.C., & Gilbert, D. (1999). A psychoeducational group intervention for
HIV-positive children: A pilot study. Health & Social Work, 24, 303-306.
Basen-Engquist, K., Coyle, K. K., Parcel, G. S., Kirby, D., Banspach, S. W., Carvajal, S.
C. et al. (2001). Schoolwide effects of a multicomponent HIV, STD, and pregnancy prevention program for high school students. Health Education & Behavior, 28(2), 166-185.
early child development. Journal of Pediatric Psychology, 19(5), 595-616.
Gossart-Walker, S., & Moss, N. E. (1998). Support groups for HIV-affected children.
Journal of Child & Adolescent Group Therapy, 8(2), 55-69.
Jemmott, J. B., Jemmott, L. S., & Fong, G. T. (1992). Reductions in HIV risk-associated
sexual behaviors among black male adolescents: Effects of an AIDS prevention intervention. American Journal of Public Health, 82(3), 372-377.
risk-reduction interventions for African-American adolescents: A randomized controlled trial. JAMA, 279(19), 1529-1536.
Kennedy, M. G., Mizuno, Y., Hoffman, R., Baume, C., & Strand, J. (2000). The effect of
tailoring a model HIV prevention program for local adolescent target audiences. AIDS Education and Prevention, 12(3), 225-238.
education and skills training (ARREST) program. Journal of Adolescent Health, 14, 533-539.
male adolescent drug users in jail. Journal of Adolescent Health, 15, 457-463.
al. (1994). Preventing HIV infection among adolescents: Evaluation of a school-based education program. Preventive Medicine, 23, 409-417.
sexual risk behaviors among runaway adolescents. JAMA, 266(9), 1237-1241.
intervention on the adjustment of adolescents whose parents have HIV/AIDS. Journal of Consulting and Clinical Psychology, 69(5), 763-773.
Schiff, W. B., Holtz, K. D., Peterson, N., & Rakusan, T. (2001). Effect of an intervention
to reduce procedural pain and distress for children with HIV infection. Journal of Pediatric Psychology, 26(7), 417-427.
controlled effectiveness trial of an AIDS prevention program for low-income African-American youths. Archives of Pediatrics and Adolescent Medicine, 150(4), 363-372.
Shirley, A. (1995). Cognitive-behavioral intervention to reduce African American adolescents’ risk for HIV infection. Journal of Consulting and Clinical Psychology, 63(2), 221-237.
of urban high school students. JAMA, 270(6), 725-730.
G. Juvenile Rheumatoid Arthritis (Tonya Palermo/ Kathy Zebracki)
Field, T. (1995). Massage therapy for infants and children. Journal of Developmental and
Behavioral Pediatrics, 16 (2), 105-111.
R., et al. (1997). Juvenile rheumatoid arthritis: Benefits from massage therapy. Journal of Pediatric Psychology, 22 (5), 607-17.
Ireys, H. T., Sills, E. M., Kolodner, K. B., & Walsh, B. B. (1996). A social support
intervention for parents of children with juvenile rheumatoid arthritis: Results of a
randomized trial. Journal of Pediatric Psychology, 21 (5), 633-41.
Klepper, S. E. (1999). Effects of an eight-week physical conditioning program on disease
signs and symptoms in children with chronic arthritis. Arthritis Care and Research, 12 (1), 52-60.
Kroll, T., Barlow, J.H., & Shaw, K. (1999). Treatment adherence in juvenile rheumatoid
arthritis—A review. Scandinavian Journal of Rheumatology, 28 (1), 10-18.
H. Sickle Cell Disease (Tonya Palermo/ Kathy Zebracki)
Dinges, D. F., Whitehouse, W. G., Orne, E. C., Bloom, P. B., Carlin, M. M., Bauer, N., et
al. (1997). Self-hypnosis training as an adjunctive treatment in the management of pain associated with sickle cell disease. International Journal of Clinical and Experimental Hypnosis, 45 (4), 417-432.
Gil, K. M., Anthony, K. K., Carson, J. W., Redding-Lallinger, R., Daeschner, C. W., &
Ware, R. E. (2001). Daily coping practice predicts treatment effects in children with sickle cell disease. Journal of Pediatric Psychology, 26 (3), 163-173.
Gil, K. M., Wilson, J. J., & Edens, J. L. (1997). The stability of pain coping strategies in
young children, adolescents, and adults with sickle cell disease over an 18-month period. Clinical Journal of Pain, 13 (2), 110-115.
al. (2000). The efficacy of a pilot family psychoeducational intervention for pediatric sickle cell disease (SCD). Families, Systems and Health, 18 (4), 381-404.
Powers, S., Mitchell, M., Graumlich, S., Byars, K., & Kalinyak, K. (2002). Longitudinal
assessment of pain, coping, and daily functioning in children with sickle cell disease receiving pain management skills training. Journal of Clinical Psychology in Medical Settings, 9 (2), 109-119.
Telfair, J., & Gardner, M. M. (1999). African American adolescents with sickle cell
disease: Support groups and psychological well-being. Journal of Black
Psychology, 25, 378-390.