Mental health concerns
- Depression
- Anxiety
- Subclinical stress
High rates of negative affect including guilt, sadness, dread, worry.
Ambivalence about care
- Witnessing the suffering of relatives
Health concerns
- Fatigue
- Sleep problems
- Risk of illness, injury, mortality
Functional impairment
Secondary strains
- Work – employment
- Financial strains
- Relationship stress
- Loss of time for self-care
- Reduced quality of life
Care decisions
- “When is it time” for various services?
- Residential placement
- End of life care planning
Resources and eligibility for services
- Housing
- Healthcare
- Community services
- Respite
Family challenges
- Conflict about care
- Lack of support for caregiver
- Balancing needs of healthy and sick family members
- Behavioral issues
- Interpersonal conflicts
Advocacy for care
- Lack of cooperation by care recipient
- Interface with service systems
- Coordinating systems
Mental health concerns
