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Resource Guide for Graduate Psychology Students with Disabilities
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National Resource Listing
GENERAL RESOURCES
People With Disabilities Foundation (PWDF)
Web site: www.pwdf.org
Contact: 507 Polk St., Mezzanine, San Francisco, CA 94102
Phone: 415-931-3070; fax: 415-931-2828
E-mail:administrator@pwdf.org
PWDF provides education and advocacy for persons with physical or mental impairments so that they can achieve equal opportunities in all aspects of life.
National Organization for Rare Disorders, Inc. (NORD)
Web site: www.rarediseases.org
Contact: 55 Kenosia Ave., PO Box 1968, Danbury, CT 06813-1968
Phone: 203-744-0100;TTY: 203-797-9590; fax: 203-798-2291;
E-mail:orphan@rarediseases.org
NORD is the only organization of its kind-a unique federation of more than 140 not-forprofit voluntary health organizations serving people with rare disorders and disabilities. They are dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them, and are committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Equip for Equality, Inc. (EFE)
Web site: www.equipforequality.org
Contact: 20 N. Michigan, Suite 300, Chicago, IL 60602
Phone: 800-537-2632;TTY: 800-610-2779; fax: 312- 341-0295
E-mail: contact@equidforequality.org
EFE is a private, nonprofit organization that operates the federally mandated protection and advocacy system for Illinois, which safeguards the rights of persons with physical and mental disabilities.
Association on Higher Education and Disability (AHEAD)
Web site: www.ahead.org
Contact: PO Box 540666, Waltham, MA 02454
Phone (Voice/TTY): 781-788-0003; fax: 781-788-0033
E-mail: ahead@ahead.org
AHEAD addresses the needs and concerns for upgrading the quality of services and support available to persons with disabilities in higher education. This includes information about membership, conferences, publications, legal information, job information, and related services.
Disability Information for Students and Professionals (DISP)
Web site: www.abilityinfo.com
Contact: webmaster@abilityinfo.com
DISP provides news, links, and communications opportunities for students interested in disability-related careers.
Heath Resource Center
Web site: www.heath.gwu.edu/
Contact: The George Washington University, Heath Resource Center
2121 K St. NW, Suite 220,Washington, DC 20037
Phone: 202-973-0904 or 800-544-3284; fax: 202-973-0908
E-mail: askheath@heath.gwu.edu
This federally funded program serves as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at American campuses, vocational technical schools, and other postsecondary training entities.
National Disabled Students Union (NDSU)
Web site: www.disabledstudents.org
Contact: 430 North East 16th Ave., Portland, OR 97343
Phone: 803-524-6029
NDSU is a national, cross-disability, student organization. They recognize all disabled people-those with traditionally recognized disabilities and those who have often been left out of the movement-as their brothers and sisters, and they recognize all students-those who work to learn, whether or not they are at recognized schools-as their colleagues.
National Center for the Dissemination of Disability Research
(NCDDR)
Web site: www.ncddr.org
Contact: 211 East Seventh St., Room 400, Austin, TX 78701-3281
Phone (Voice/text): 800-266-1832 or 512-476-6861; fax: 512-476-2286
E-mail: NCDDR@sedl.org
NCDDR lists different Web sites related to statistics on disabilities and links to major areas of research focused upon by NIDRR projects, which include employment outcomes; health and function; technology for access and function; independent living and community integration; and associated disability research areas such as disability statistics, disability studies, disability policy development, and rehabilitation science/outcome measures.
Online Disability Information System Database (ODIS)
Web site:
www.umaine.edu/cci/
Contact: Center for Community Inclusion, Maine's University Affiliated Program, The University Of Maine, 5717 Corbett Hal
University of Maine, Orono, ME 04469-5717
Phone: 207-581-1084;TTY: 207-581-3328; fax: 207-581-1231.
ODIS is designed to help users find the best Web sites about postsecondary education for students with disabilities.
Disability Information for Students (DIS)
Web site: www.abilityinfo.com
DIS provides resources and discussion for students studying in the field of disability and those working in it. It contains news, jobs, and resources to support individuals with disabilities and over 200 disability and student Web links.
Libraries Without Walls
(Equal Access to Software and Information [EASI])
Web site: www.rit.edu/~easi/lib/csun96bc.htm
Contact: PO Box 818, Lake Forest, CA 92609
Phone: 949-916-2837;
E-mail: info@easi.cc
EASI is the premiere provider of online training on accessible information technology for persons with disabilities.
Access E-Bility
Web site: www.ebility.com/index.php
Contact: 204/15 Warayama Pl., Rozelle NSW 2039, Australia
E-mail: S.Vassallo@e-bility.com
This online community for people with disabilities features news, chat, and resources.
National Center for Education Statistics-An Institutional Perspective on
Students With Disabilities in Postsecondary Education
Web site: nces.ed.gov/pubs99/1999046.pdf (190 KB)
Contact: National Center for Education Statistics
Office of Education Resources & Improvement
U.S. Department of Education
555 New Jersey Ave., NW, Washington, DC 20208-5574
Phone: 887-433-7827
This 76-page report (PDF format) outlines research findings into issues related to students who have disabilities.
EmployAbilities
Web site: www.employabilities.ab.ca/
Contact: #402, 10909 Jasper Ave.; Edmonton, AB Canada T5J 3L9
Phone: 780-423-4106; fax: 780-426-0029
E-mail: employ@employabilities.ab.ca
EmployAbilities is dedicated to promoting and enhancing employment and learning opportunities for persons with disabilities in Alberta, Canada.
ADHD/ADD
College and ADD
Web site: www.add.org/content/legal/college.htm
This provides organization information as well as a survival guide for college students with ADD or ADHD.
Children and Adults With Attention Deficit Disorders (CHADD)
Web site: www.chadd.org
Contact: 8181 Professional Pl., Suite 201, Landover, MD 20785
Phone: 800-233-4050; fax: 301-306-7090
This parent-based organization was formed to better the lives of individuals with attention deficit disorders and their families.
SAALD (Student Alliance on ADD)
Web site: www.adult-add.org
This site helps students, parents, and teachers cope with learning disabilities as well as provides information for anyone interested in learning disabilities.
AMPUTEES
Amputee Coalition of America
Web site: www.amputee-coalition.org
Contact: 900 East Hill Ave., Suite 285, Knoxville, TN 37915-2568
Phone: 888-AMP-KNOW or 888-267-5669
Knoxville: 865-524-8772; fax: 865-525-7917
This national limb loss information center provides resources for people with limb loss, their families, friends, and health care professionals.
ARTHRITIS
Road Back Foundation (Arthritis)
Web site: www.roadback.org
Contact: PO Box 447, Orleans, MA 02653
Voice mail: 614-227-1556
Road Back offers help for those with rheumatoid arthritis, scleroderma, lupus, polymyositis, Reiter's syndrome, psoriatic arthritis, and ankylosing spondylitis.
ASPERGER'S SYNDROME
Asperger Syndrome Coalition of the U.S. (ASC-U.S.)
Web site: www.asperger.org
Contact: PO Box 351268, Jacksonville, FL 32235
Phone: 866-4ASPRGR
The Asperger Syndrome Coalition of the U.S. is a national nonprofit organization committed to providing the most up-to-date and comprehensive information on Asperger syndrome and related conditions.
ASTHMA/SEVERE ALLERGIES
Asthma and Allergy Foundation of America
Web site: www.aafa.org
Contact: 1233 20th St., NW, Suite 402, Washington, DC 20036
Phone: 202-466-7643; fax: 202-466-8940
This not-for-profit organization is dedicated to finding a cure for and controlling asthma and allergic diseases, as well as improving peoples' quality of life through education, advocacy, and research.
AllAllergy
Web site: www.allallergy.net
This provides access to asthma, allergy, and intolerance information on the Web. It includes articles, organizations, books and journals, events, and a products and allergen database.
AUTISM
Autism National Committee
Web site: www.autcom.org
Phone: 800-424-8666
This is the only autism advocacy organization dedicated to "Social Justice for All Citizens With Autism" through a shared vision and a commitment to positive approaches. This organization was founded in 1990 to protect and advance the human rights and civil rights of all persons with autism, pervasive developmental disorder, and related differences of communication and behavior. In the face of social policies of devaluation, which are expressed in the practices of segregation, medicalization, and aversive conditioning, they assert that all individuals are created equal and endowed with certain inalienable rights.
BLIND/VISUALLY IMPAIRED
American Council of the Blind
Web site: www.acb.org
Contact: 1155 15th St., NW, Suite 720, Washington, DC 20005
Phone: 800-424-8666
This Web site provides general information about the Council of the Blind, including recent issues of their monthly publication, The Braille Forum. It also has job listings, helpful resources, and information on conventions.
Recording for the Blind & Dyslexic
Web site: www.rfbd.org
Contact: 20 Roszel Rd., Princeton, NJ 08540
Phone: 609-452-0606
This organization offers books on tape for students who are members, throughout their schooling.
National Federation of the Blind
Web site: www.nfb.org
Contact: 805 Fifth Ave., Grinnell, IA 50112
Phone: 515-236-3366
The purpose of the National Federation of the Blind is two-fold-to help blind persons achieve self-confidence and self-respect and to act as a vehicle for collective self-expression by the blind. By providing public education about blindness, information and referral services, scholarships, literature and publications about blindness, aids and appliances and other adaptive equipment for the blind, advocacy services and protection of civil rights, Job Opportunities for the Blind, development and evaluation of technology, and support for blind persons and their families, members of the NFB strive to educate the public that the blind are normal individuals who can compete on terms of equality.
Guide Dogs for the Blind, Inc.
Web site: www.guidedogs.com
Contact: National Office, PO Box 151200, San Rafael, CA 94915-1200
Phone: 800-295-4050
This nonprofit organization supports guide dog breeding and training and offers information on handling guide dogs, becoming a trainer, and interacting with the blind.
CANCER
American Cancer Society, Inc.
Web site: www.cancer.org
Contact: 1599 Clifton Rd., NE, Atlanta, GA 30329
Phone: 800-ACS-2345
The American Cancer Society is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
Women's Cancer Resource Center (WCRC)
Web site: www.givingvoice.org
Contact: 4604 Chicago Ave., S., Minneapolis, MN 55407
Phone: 612-822-4846 (locally) or 877-892-6742 (nationally)
WCRC provides information, services, and support for women with cancer and their loved ones.
CEREBRAL PALSY
United Cerebral Palsy
Web site: www.ucpnyc.org
Contact: Marketing Dept., 80 Maiden Lane, 8th Fl., New York, NY 10038
Phone: 800 GIVE-UCP or 212-683-6700, ext. 212
The mission of United Cerebral Palsy is to provide the highest quality services in health care, education, employment, housing, and technology resources that support people with cerebral palsy and related disabilities in leading independent and productive lives.
Inter-American Conductive Education Association (IACEA)
Web site: www.iacea.org
Contact: PO Box 4048, Roselle Park, NJ 07204 USA
Phone: 908-298-0819 or 800-824-ACEA
IACEA provides information about education, motor skill training, and assistance for people with cerebral palsy and other neurological disabilities.
Cerebral Palsy Information Centrall
Web site: geocities.com/aneecp/index2.html
Contact: CPIC C/o Anee Stanford,West Campus #104 ISU
Pocatello ID 83209
E-mail: anee@aol.com
The goal of CPIC is to educate people about cerebral palsy, provide a central place on the Internet for people to find information about cerebral palsy, and provide support to those who have cerebral palsy and their families and health care providers.
DEAF & HARD OF HEARING
Alexander Graham Bell Association for the Deaf and Hard of Hearing
Web site: www.agbell.org
Contact: 3417 Volta Pl.,NW,Washington, DC 20007
Phone (Voice and TTY): 202-337-5220
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is the world's oldest and largest membership organization promoting the use of spoken language by children and adults with hearing loss. Members include parents of children with hearing loss, adults who are deaf or hard of hearing, educators, audiologists, speech-language pathologists, physicians, and other professionals in fields related to hearing loss and deafness.The association promotes its mission through advocacy, publications, financial aid and scholarships, and numerous programs and services.
The National Association of the Deaf
Web site: www.nad.org
Contact: 814 Thayer Ave., Silver Spring, MD 20910-4500
Phone: 301-587-1788;TTY: 301-587-1791
NAD was established in 1880 and is the oldest and largest constituency organization safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications.
The Midwest Center for Postsecondary Outreach
Web site: www.mcpo.org
Phone: 651-846-1432;TTY: 651-846-1532
MCPO promotes increased access and availability of postsecondary education for deaf and hard-of-hearing persons in the Midwest.
Deaf Women Against Violence
Web site: www.dwav.org
Contact: Attn.: Julie Rems-Smario, Executive Director
24802 Mission Blvd., Hayward, CA 94544
Phone: 510-538-0107;TTY: 510-538-0153
The key focus of Deaf Women Against Violence is to provide support and empowerment through a wide range of services to deaf women and children who are victims of sexual assault and domestic violence.We are committed to changing attitudes that foster and perpetuate violence. Our purpose is to communicate to deaf women and children that they can make choices to take control of their lives, and to make available to them the support they need to proceed on the path towards healing.
Deaf Resource Library (DRF)
Web site: www.deaflibrary.org/
Contact: comments@deaflibrary.org
DRF provides various research, lists of resources, and information concerning deaf communities in the United States and internationally.The Deaf Resource Library is a winner of the Deaf Watch Gold Award.
Deaf Queer Resource Center (DQRC)
Web site: www.deafqueer.org/
DQRC is an online national nonprofit resource and information center founded and directed by Deaf Queer Activist Dragonsani Renteria. Considered "the place" to find the most comprehensive and accurate information about the deaf lesbian, gay, bisexual and transgendered community, this multi-award-winning Web site averages more than 10,000 unique visits per month.
Deafblind Online
Web site: www.ssco.esu.k12.oh.us/ocdbe/index.html
This online organization provides resources and discussions surrounding the area of persons with dual sensory impairments, by Great Lakes Area Regional Center for Deaf Blind Education.
Midwest Center on Law and the Deaf
Web site: www.mcld.org
Contact: 36 South Wabash, Suite 1101, Chicago, IL 60603
Phone: 800-894-3653;TTY: 800-894-3654; fax: 312-726-7182
MCLD helps deaf and hard-of-hearing people find attorneys willing to provide accessible legal services. It also assists attorneys in providing sign language interpreters, real-time captioning, and any other modes of communication necessary for them to communicate with deaf and hard-of-hearing clients. MCLD acts as a resource and clearinghouse on deafness-related issues and legal issues affecting deaf and hard-of-hearing people. If you or a deaf or hard-of-hearing person you know has difficulty getting a lawyer, court, doctor, hospital, employer, or other public entity or accommodation to provide an interpreter or other communication assistance, please contact MCLD to assist you.
DIABETES
American Diabetes Association
Web site: www.diabetes.org/home.jsp
Contact: Attn.: Customer Service, 1701 North Beauregard St.
Alexandria, VA 22311
Phone: 800-DIABETES or 800-342-2383
The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information, and advocacy. The mission of the organization is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
International Diabetes Foundation
Web site: www.idf.org
The International Diabetes Federation is the only global advocate for people with diabetes and their health care providers.
EPILEPSY
The Epilepsy Foundation of America
Web site: www.efa.org
Contact: 4351 Garden City Dr., Landover, MD 20785-7223
Phone: 800-332-1000
The Epilepsy Foundation tries to ensure that people with seizures are able to participate in all life experiences and to prevent, control, and cure epilepsy through research, education, advocacy, and services.
American Epilepsy Society (AES)
Web site: www.aesnet.org
Contact: 342 North Main St., West Hartford, CT 06117-2507
Phone: 860-586-7505 or 860-586-7550
AES promotes research and education for professionals dedicated to the prevention, treatment, and cure of epilepsy.
FIBROMYALGIA & CHRONIC FATIGUE SYNDROME
American Fibromyalgia Syndrome Association, Inc.
Web site: www.afsafund.org
Contact: 6380 E. Tanque Verde, Suite D, Tucson, AZ 85715
Phone: 520-733-1570
This is a nonprofit organization dedicated to funding research on fibromyalgia syndrome and chronic fatigue syndrome.
Shasta CFIDS
Web site: www.shasta.com/cybermom
This nonprofit online support group provides information, education, and support for people affected by chronic fatigue syndrome, fibromyalgia, and mycoplasma infections.
The Unify Coalition
Web site: www.cssa-inc.org/_unify/rebuilding.htm
Contact: CSSA, Inc., 801 Riverside Dr., Lumberton, NC 28358-4625
E-mail: Nancysoloatnnsolo@cssa-inc.org
The Unify Coalition is an international advocacy list for those who suffer from the overlapping "invisible" conditions of fibromyalgia syndrome (FMS), Gulf War syndrome (GWS), multiple chemical sensitivity syndrome (MCS), chronic fatigue syndrome (ME/CFS), and related conditions.
Guillain-Barre
Web site: www.gbs.org/
Phone: 323-860-5200; fax: 323-962-8513
This is a virtual Web site dedicated to archiving, collecting, and disseminating information concerning Guillain-Barre and related syndromes.
HEADACHE SUFFERERS
Migraine Awareness Group (MAGNUM)
Web site: www.migraines.org/disability
Contact: 113 South St., ASAPH, Suite 300, Alexandria, VA 22314
Phone: 703-739-9384; fax: 703-739-2432
This organization aims to bring public awareness to the fact the migraine is a true biologic neurological disease, using the electronic, print, and artistic mediums of expression. They assist migraine sufferers, their families, and coworkers and help them improve the quality of life and lessen the burden of migraine disease and head-pain disorder worldwide.
National Headache Foundation (NHF)
Web site: www.headaches.org
Contact: 425 West St., James Place, 2nd Fl., Chicago, IL 60614-2750
Phone: 888-843-2256
The mission of NHF is to serve as an information resource to headache sufferers, their families, and to the health care providers who treat them; to promote research into potential headache causes and treatments; and to educate the public to the fact that headaches are a legitimate biological disease, and sufferers should receive understanding and continuity of care.
HIV/AIDS AND IMMUNE DISORDERS
Health Info
Web site: www.uhfpres.org/health.htm
This provides valuable information, issues, and organizations for students.
AIDS Healthcare Foundation
Web site: www.aidshealth.org
Contact: 6255 W. Sunset Blvd., 21st Fl., Los Angeles, CA 90028-7403
Phone: 323-860-5200; fax: 323-962-8513
AIDS Healthcare Foundation is the largest provider of specialized HIV/AIDS medical care in the United States. Its mission is to provide cutting-edge medicine and advocacy, regardless of a recipient's ability to pay. They work to end the AIDS epidemic through prevention and research and advocate for the rights of all persons living with HIV/AIDS, with particular emphasis on the most underserved, including women, gay men, people of color, incarcerated individuals, and drug users.
Immune Deficiency Foundation
Web site: www.primaryimmune.org
Contact: 40 W. Chesapeake Ave., Suite 308, Towson, MD 21204
Phone: 800-296-4433; fax: 410-321-9165
Immune Deficiency Foundation is dedicated to improving the diagnosis and treatment of patients with primary immunodeficiency diseases through research and education.
LEARNING DISABILITIES
About Dyslexia
Web site: www.interdys.org/index.jsp
Contact: Chester Bldg., Suite 382, 8600 LaSalle Rd
Baltimore, MD 21286-2044
Phone: 410-296-0232
About Dyslexia offers support and resources to improve the lives of students with learning differences. Its main goal has been to provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge with each other.
Recording for the Blind & Dyslexic
Web site: www.rfbd.org
Contact: 20 Roszel Rd., Princeton, NJ 08540
Phone: 609-452-0606
This organization offers books on tape for students who are members throughout their schooling. Anyone with a documented disability that limits or prevents his or her ability to read standard print effectively is eligible to become a registered member with RFB&D. This includes people with visual impairments, learning disabilities, or other physical disabilities. RFB&D's library offers more than 93,000 titles.
Learning Disabilities Association of American (LDA)
Web site: www.ldanatl.org
Contact: 4156 Library Rd., Pittsburgh, PA 15234-1349
Phone: 412-341-1515
This is a national volunteer organization that provides help to parents, professionals, and individuals with learning disabilities. LDA is dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families by encouraging effective identification and intervention, fostering research, and protecting their rights under the law.
The International Dyslexia Association
Web site: www.interdys.org
Contact: Chester Bldg., Suite 382, 8600 LaSalle Rd.
Baltimore, MD 21286-2044
Phone: 800-ABCD123 or 800-222-3123; fax: 410-321-5069
This association serves individuals with dyslexia, their families, and professionals in the field. Has more than 40 branches throughout the United States and Canada.
MENTAL ILLNESS
National Alliance for the Mentally Ill (NAMI)
Web site: www.nami.org
Contact: PO Box 79972, Baltimore, MD 21279-0972
Phone: 703-524-7600
NAMI is a nonprofit, grassroots, self-help, support, and advocacy organization of consumers, families, and friends of people with severe mental illnesses, such as schizophrenia, major depression, bipolar disorder, obsessive compulsive disorder, and anxiety disorders. Founded in 1979, NAMI has more than 210,000 members who seek equitable services for people with severe mental illnesses, which are known to be physical brain disorders. Working on the national, state, and local levels, NAMI provides education about severe brain disorders; supports increased funding for research; and advocates for adequate health insurance, housing, rehabilitation, and jobs for people with serious psychiatric illnesses.
National Mental Health Association
Web site: www.nmha.org
Contact: 1021 Prince St., Alexandria,VA 22314-2971
Phone: 703-684-7722;TTY: 800-433-5959; fax: 703-684-5968
This association is dedicated to improving the mental health of all individuals and achieving victory over mental illnesses.
World Fellowship for Schizophrenia and Allied Disorders (WFSAD)
Web site:www.world-schizophrenia.org
Contact: 869 Yonge St., Suite 104, Toronto, Ontario, M4W 2H2, Canada
Phone: +1 416 961-2855; fax: +1 416 961-1948
The WFSAD is the only international organization dedicated to lightening the burden of schizophrenia (and allied disorders) for sufferers and their families. Members and associates provide direct services, run self-help groups, conduct workshops, produce educational materials, arrange conferences, advocate for better treatment and appropriate services, manage research funds, and, thus, influence government policies.
Anxiety Disorders Association of America (ADAA)
Web site: www.adaa.org
Contact: 11900 Parklawn Dr., Suite 100, Rockville, MD 20852
Phone: 301-231-9350
The ADAA brings together professionals from many different disciplines, including psychiatrists, psychologists, social workers, physicians, nurses, and other health professionals. Through its networks, the ADAA increases awareness about anxiety disorders, provides education resources, offers access to care, and supports research.
National Foundation for Depressive Illness, Inc. (NAFDI)
Web site: www.depression.org/index
Contact: PO Box 2257, New York, NY 10116
Phone: 800-239-1265
NAFDI was established in 1983 to provide public and professional information about affective disorders, the availability of treatment, and the urgent need for further research. The Foundation is committed to an extensive, ongoing public information campaign addressed to this pervasive, costly, and hidden national emergency.
National Association for Anorexia Nervosa and Associated Disorders (ANAD)
Web site: www.anad.org
Contact: PO Box 7, Highland Park, IL 60035
Phone: 847-831-3438
This is an association of lay and professional people dedicated to alleviating the problems of eating disorders. ANAD serves the nation, and increasingly the world, as an association concerned with and providing programs for the entire eating disorders field.
NY Society for the Study of Multiple Personality and Dissociation (NYSSMP&D)
Web site: www.nyssmpd.org
Contact: Columbia University Teachers College
525 West 120th St., New York, NY 10027
Phone: 516-623-3989
The NYSSMP&D is an educational organization whose purpose is to further the understanding of Multiple Personality (DID) and other dissociative states. It is composed of both professionals and lay members, and is open to any interested individual.
MULTIPLE SCLEROSIS
Multiple Sclerosis Association of America
Web site: www.msaa.com
Contact: 706 Haddonfield Rd., Cherry Hill, NJ 08002
Phone: 800-532-7667; fax: 856-661-9797
This is a national and international nonprofit charitable organization serving those, and the families of those, with multiple sclerosis and other neurological diseases.
National Multiple Sclerosis Society
Web site: www.nmss.org
Contact: 733 Third Ave., New York, NY 10017
Phone: 800-Fight MS; 800-344-4867
The society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs--including support for the newly diagnosed and those living with MS.
PARALYSIS/SPINAL CORD INJURIES
National Spinal Cord Injury Association
Web site: www.spinalcord.org
Contact: 6701 Democracy Blvd., Suite 300-9, Bethesda, MD 20817 or 545 Concord Ave., Suite 29, Cambridge, MA 02138
Phone: 301-588-6959 or 617-441-8500; fax: 301-588-9414
This interactive online community provides information, referral, and support for people living with spinal cord injury, their families, and professionals.
Spinal Cord Injury Resource Guide at MGH
Web site: neurosurgery.mgh.harvard.edu/spine/lnkspine.htm
This is Massachusetts General Hospital Neurosurgery's online guide to organizations providing support and education about spinal cord injuries.
Spinal Cord Injury Network International
Web site: www.sonic.net/~spinal
Contact: 3911 Princeton Dr., Santa Rosa, CA 95405-7013
Phone: 800-548-CORD or 800-548-2673 or 707-577-8796
fax: 707-577-0605
E-mail: spinal@sonic.net
This is a nonprofit organization providing information and referral services to spinal cord- injured individuals and their families.
REFLEX SYMPATHETIC DYSTROPHY/COMPLEX REGIONAL PAIN SYNDROME
The American RSDHope Group
Web site: www.rsdhope.org
Contact: PO Box 875, Harrison, ME 04040
Reflex sympathetic dystrophy syndrome (RSDS) is a disease that affects millions across the United States. Early diagnosis and proper treatment after diagnosis is the key toward helping those afflicted with RSDS. Education of health professionals and patients is a major tool toward helping patients to avoid living a life of pain caused by this progressive disease of the autonomic nervous system. Because the lack of information contributes to the hopelessness of RSDS patients, our organization, and in fact our name, RSDHope, is dedicated to filling that gap.
RSDS Association
Web site: www.rsds.org
Contact: RSDS Association, 116 Haddon Ave., Suite D
Haddonfield, NJ 08033
Phone: 609-795-8845
This is a Web site/organization that provides a lot of varied information about this syndrome and links to other Web sites.
RESTLESS LEG SYNDROME
Restless Leg Syndrome (RLS) Foundation, Inc.
Web site: www.rls.org
Contact: PO Box 7050 Dept. WWW; Rochester, MN 55902-2985
This describes features, causes, diagnosis, treatments, and drug therapies; provides resource listings.
SPINA BIFIDA
Spina Bifida Association of America
Web site: www.sbaa.org
Contact: 4590 MacArthur Blvd., NW, Suite 250
Washington, DC 20007-4226
Phone: 800-621-3141; fax: 202-944-3295
The association's goal is to promote the prevention of spina bifida and to enhance the lives of all affected. The association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters.
Education Resources for People With Disabilities, Carnegie
Web site: www.carnegielibrary.org/subject/disabled/edu.html
Contact: Carnegie Library of Pittsburgh-Main
4400 Forbes Ave., Pittsburgh, PA 15213
Phone: 412-622-3114 or 412-622-3118
E-mail: trru@carnegielibrary.org
This provides information for individuals with spina bifida and their families. Includes information about individual groups and organizations.
STROKE
The Stroke Network, Inc.
Web site: www.strokenetwork.org
Contact: PO Box 492, Abingdon, MD 21009
This is an online stroke support organization that is available to everybody, worldwide. It serves as the homepage for a network of several other smaller Web sites owned by The Stroke Network Inc. Provided is online support to stroke survivors, stroke caregivers, stroke survivors who must deal with the problems that the survivor must face daily.
STUTTERING
The National Center for Stuttering
Web site: www.stuttering.com
Phone: 800-221-2483
The center's mission is to provide up-to-date factual information about stuttering, to treat small groups of selected individuals who stutter, to provide continuing education for speech pathologists, and to conduct research into the causes and treatment of stuttering.
TOURETTE SYNDROME
Tourette Syndrome Association, Inc. (TSA)
Web site: www.tsa-usa.org
Contact: 42-40 Bell Blvd., Bayside, NY 11361
Phone: 718-224-2999
TSA's mission is to identify the cause of, find the cure for, and control the effects of this disorder. It develops and disseminates educational material to individuals, professionals, and agencies in the fields of health care, education, and government; coordinates support services to help people and their families cope with the problems that occur with Tourette syndrome (TS); funds research that will ultimately find the cause of and cure for TS and lead to improved medications and treatments.
TRAUMATIC BRAIN INJURY/TUMORS
Perspectives Network On-Line
Web site: www.tbi.org
Contact: PO Box 1859, Cumming, GA 30028-1859
The primary focus is positive communication between persons with brain injury, family members/caregivers/friends of persons with brain injury, professionals who treat persons with brain injury, and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury.
American Brain Tumor Association
Web site: hope.abta.org/site/PageServer
Contact: 2720 River Rd., Suite 146, Des Plaines, IL 60018-4110
Phone: 800-886-2282
E-mail: abta@aol.com
Brain tumor information, treatment explanations, support resources, and research updates are available at this site. The American Brain Tumor Association exists to eliminate brain tumors and to meet the needs of brain tumor patients and their families.
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