Health-Related Disorders in Children and Adolescents: A Guidebook for Understanding and Educating

Pages: 743
Item #: 4312060
ISBN: 978-1-55798-485-2
List Price: $39.95
Member/Affiliate Price: $34.95
Copyright: 1998
Format: Hardcover
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For individuals in the U.S. & U.S. territories

Note: This book is out of print and no longer available for purchase.
Overview

National and state law now mandate that school professionals provide education and care for children with health and handicapping disorders. Health-Related Disorders in Children and Adolescents contains succinct, up-to-date reviews of 96 medical conditions that describe the educational, psychological, and behavioral challenges that those involved in the care of children must respond to. This volume covers many poorly understood disorders (like Laurence–Moon syndrome and Rett syndrome), as well as more commonly occurring ones (like ear infections, cerebral palsy, and sickle-cell anemia).

This volume is a resource for practitioners and medical professionals. Each chapter reviews the etiology of the disorder, which is followed by a section on the expected behavioral and physical outcomes. Next, authors describe psychoeducational implications and cover interventions that school psychologists, school-based professionals, and medical professionals can use to help ease the suffering of these children. The practical value of each chapter is enhanced by inclusion of an annotated bibliography, a list of resources for support organizations and information centers, and clear definitions for complex medical terminology. School personnel will also find this an invaluable resource and useful bibliographic tool to help educate parents on the problems their children are facing.

Written in an easy-to-understand style, and comprehensive in scope, this volume will be an invaluable resource for all school and local libraries, and for school psychologists, teachers, school counselors, social workers, psychiatrists, medical personnel, occupational therapists, speech therapists, physiotherapists-indeed anyone who works with children and adolescents afflicted with these complex health-related disorders.

Table of Contents

List of Contributors

Acknowledgments

I. Background Information

  1. How to Use This Book
    —LeAdelle Phelps
  2. A Guide to Genetics
    —LeAdelle Phelps
  3. Role of the School-Based Professional in Health-Related Services
    —Thomas J. Power, George J. DuPaul, Edward S. Shapiro, and John M. Parrish

II. Health-Related Disorders

  1. Achondroplasia (Dwarfism)
    —Georgia Frey and Douglas Palmer
  2. Adrenoleukodystrophy
    —Harvey N. Switzky, James P. Van Haneghan, and Abigail Baxter
  3. Albinism
    —Frank Murtha
  4. Angelman Syndrome
    —Richard J. Morris and Yuonne P. Morris
  5. Apert Syndrome (Acrocephalosyndactyly Type I)
    —Georgia Frey and Douglas Palmer
  6. Arthritis (Juvenile Rheumatoid)
    —Eric L. Robinson
  7. Asperger's Disorder
    —Jonathan M. Campbell and Sam B. Morgan
  8. Asthma (Childhood)
    —Paul B. de Mesquita and Catherine A. Fiorello
  9. Autism
    —Christine L. Cole and Kristin Arndt
  10. Bardet-Biedl Syndrome
    —Richard J. Morris and Yvonne P. Morris
  11. Bronchopulmonary Dysplasia
    —Stephen R. Hooper, Anita M. Farel, Stuart W. Teplin, and Ernest N. Kraybill
  12. Callosal Agenesis
    —J. Yvette Cornett and Jeff Laurent
  13. Cancer (Childhood)
    —Ching-Yen Li and Robert N. Wendt
  14. Cardiac Disorders
    —Stewart W. Ehly
  15. Celiac Disease
    —Nancy Ewald Jackson and Joseph A. Murray
  16. Central Auditory Processing Disorders
    —Warren D. Keller and Kim L. Tillery
  17. Cerebral Palsy
    —Richard J. Nagle and Lorraine H. Campbell
  18. CHARGE Syndrome or Association
    —Timothy S. Hartshorne and Nancy S. Hartshorne
  19. Chronic Fatigue Syndrome and Fibromyalgia Syndrome in Childhood
    —Gail Brown
  20. Cleft Lip and Palate
    —Catherine A. Fiorello, Lynda Brown Wright, and Emanuel J. Mason
  21. Congenital Adrenal Hyperplasia
    —Carol A. Boliek and John E. Obrzut
  22. Cornelia de Lange Syndrome
    —Mary M. Young and Joan Mayfield
  23. Craniofacial Osseointegration and Maxillofacial Surgery
    —Henry Janzen, Wes Miller, and Erik Wikman
  24. Cri-du-Chat Syndrome
    —Phyllis S. Ohr
  25. Crohn's Disease
    —Briley E. Proctor and John H. Kranzler
  26. Cystic Fibrosis
    —George Batsche and Hope Tunnicliffe
  27. Cytomegalovirus
    —Maryann Santos de Barona
  28. Dandy-Walker Syndrome
    —Stephen Greenspan
  29. Deaf–Blindness
    —Kevin D. Arnold
  30. Dermatomyositis (Juvenile)
    —Stephanie Koraleski
  31. Diabetes Mellitus (Insulin Dependent)
    —T. Steuart Watson and Pat Logan
  32. DiGeorge Syndrome
    —Fred M. Grossman
  33. Down Syndrome
    —Sylvia Z. Ramirez and Valerie Morgan
  34. Dyke–Davidoff–Masson Syndrome
    —Deborah King Kundert
  35. Enuresis and Encopresis
    —Gretchen A. Gimpel
  36. Familial Dysautonomia (Riley–Day Syndrome)
    —Paul J. Meller, Paula Larson, and Cheryl Engel
  37. Fetal Alcohol Syndrome
    —Jacqueline J. Smith and Janet L. Graden
  38. Fragile X Syndrome
    —Randall S. Klaiman and LeAdelle Phelps
  39. Hemolytic–Uremic Syndrome
    —Elaine Clark and Scott Orme
  40. Hemophilia
    —Mickey Randolph and Yvette Talamo
  41. Hirschsprung's Disease
    —Craig L. Frisby
  42. HIV and AIDS (Pediatric and Adolescent)
    —Christy Mangione, Steven Landau, and John B. Pryor
  43. Huntington's Disease
    —Patricia L. Nation, Kerri Turk, and Cecil Reynolds
  44. Hyperfunctional Dysphonia
    —Sarah J. Allen
  45. Hypopituitarism and Growth Hormone Deficiency
    —John H. Kranzler and Briley E. Proctor
  46. Jaundice (Neonatal)
    —Frederic J. Medway and Suzanne Thomas
  47. Klinefelter Syndrome
    —Dean W. Ginther and Harry Fullwood
  48. Larsen Syndrome
    —Kellie A. Chidester and Michelle K. Demaray
  49. Laurence–Moon Syndrome
    —David S. Nathanson
  50. Lead Exposure
    —LeAdelle Phelps and David S. Nathanson
  51. Lesch–Nyhan Disease
    —Steven G. Little and Jennifer E. Rodemaker
  52. Leukemia (Childhood)
    —Joseph E. Zins, Charlene R. Ponti, and Robert B. Noll
  53. Louis–Bar Syndrome (Ataxia Telangiectasia)
    —Raymond E. Webster
  54. Lowe Syndrome
    —Christopher Lopata
  55. Marfan Syndrome
    —David E. McIntosh and Molly S. Stebbins
  56. Meningitis and Encephalitis
    —Cathy W. Hall
  57. Metabolic Disorders in Childhood and Adolescence
    —Teresa A. Hutchens and J. Noland White, Jr.
  58. Microcephaly, Macrocephaly, and Hydrocephalus
    —S. Kristian Hill and Raymond S. Dean
  59. Mucopolysaccharide Disorders (Hurler, Scheie, Hurler–Scheie, Hunter, Morquio, and Sanfilippo Syndromes)
    —Michael B. Brown and Paul S. Trivette
  60. Munchausen Syndrome by Proxy
    —Canby Robinson and Mary E. Naskett
  61. Neurofibromatosis
    —LeAdelle Phelps
  62. Neuromuscular Diseases
    —Jonathan Sandoval
  63. Noonan Syndrome
    —Carolyn Fakouri and Ebrahim Fakouri
  64. Organ Transplantations (Pediatric)
    —Varda Konstam
  65. Osteogenesis Imperfecta
    —Georgia Frey, Douglas Palmer, and Roger Bounds
  66. Otitis Media (Ear Infections)
    —Paul S. Trivette
  67. Pain Management
    —Ronald T. Brown, Oscar F. Tanaka, and Joan E. Donegan
  68. PCB Exposure
    —Joan Newman and Kimberly A. Campbell
  69. Phenylketonuria
    —Karen T. Carey and Beth M. Lesen
  70. Pica
    —Robert W. Motta and Dina M. Basile
  71. Pierre Robin Sequence
    —Shelley L. F. Pelletier, G. Bradley Schaefer, and Mary M. Young
  72. Prader–Willi Syndrome
    —Linda L. Daniel and Betty E. Gridley
  73. Prenatal Exposure to Cocaine
    —Merith Cosden and Rene Barbieri-Welge
  74. Rett Syndrome
    —Jerry B. Hutton
  75. Reye's Syndrome
    —J. Gary Evans
  76. Rumination
    —Timothy R. Vollmer and Henry S. Roane
  77. Sanfilippo Syndrome
    —Susan Jacob-Timm and Julia A. Daniels
  78. Sarcoidosis
    —Lynda Brown Wright, Emannuel J. Mason, and Carol Bunch Williams
  79. Seizure Disorders
    —Phyllis Anne Teeter and Margaret Semrud-Clikeman
  80. Sickle Cell Anemia
    —Linda W. Morse and Agnes E. Shine
  81. Smith–Magenis Syndrome
    —James P. Van Haneghan, Harvey N. Switzky, and Abigail Baxter
  82. Sotos Syndrome
    —David K. Marcus and Richard Eglsaer
  83. Spina Bifida
    —Agnes E. Shine
  84. Sturge–Weber Syndrome
    —Heather Cody and George W. Hynd
  85. Stuttering
    —Melissa A. Bray and Thomas J. Kehle
  86. Tay–Sachs Disease
    —Laurie Ford and Michal Nissenbaum
  87. Tourette Syndrome
    —Robert G. Harrington
  88. Traumatic Brain Injury
    —Pamela Carrington Rotto
  89. Treacher Collins Syndrome
    —Marjorie A. Padula
  90. Trichotillomania (Compulsive Hair Pulling)
    —Scott Adam Napolitano
  91. Tuberous Sclerosis
    —Cynthia A. Riccio and Patti L. Harrison
  92. Turner's Syndrome
    —Dean W. Ginther and Harry Fullwood
  93. Ulcerative Colitis
    —Beth M. Lesen
  94. Visual Impairments: Amblyopia, Nystagmus, and Strabismus
    —Deborah Ring Kundert, Jill M. Kuhn, and Michael B. Brown
  95. Williams Syndrome
    —Thomas J. Kehle and Melissa A. Bray
  96. Wilson's Disease
    —Tina Linnea Leist

Glossary

Index

About the Editor

Editor Bio

LeAdelle Phelps, PhD, is professor and director of the School Psychology Program in the Department of Counseling and Educational Psychology at the State University of New York at Buffalo. Between 1987 and 1989, she was chief psychologist at the Traumatic Head Injury Clinic located at Still Hospital in Jefferson City, Missouri.

She has written and published more than 50 journal articles and book chapters on such diverse health-related topics as eating disorders, prenatal alcohol and cocaine exposure, and lead poisoning. She authored the Phelps Kindergarten Readiness Scale, a nationally standardized assessment tool evaluating learning readiness aptitudes predictive of later school achievement. She is associate editor of Psychology in the Schools and serves on the editorial boards of Journal of School Psychology, School Psychology Quarterly, and School Psychology Review.

Dr. Phelps has assumed national leadership roles, including chairing the Council of Directors of School Psychology Programs. She maintains a private practice specializing in neuropsychological assessment and therapeutic interventions with children and adolescents.