Adaptation to Changing Health: Response Shift in Quality-of-Life Research

Pages: 227
Item #: 4318950
ISBN: 978-1-55798-710-5
List Price: $39.95
Member/Affiliate Price: $34.95
Copyright: 2000
Format: Hardcover
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Overview

Individual chapters of this book are available to purchase online.

When health fails or injury occurs, individuals often reappraise the values and activities that have given their lives meaning. Researchers are just beginning to delve into the impact that health changes have on one's perceived quality of life. This text serves to aid researchers in better understanding and identifying these effects over time.

Edited by response-shift pioneers Carolyn Schwartz and Mirjam A. G. Sprangers, this book is the first to examine the construct comprehensively, including its theoretical underpinnings, methodology for assessment in primary and secondary data analyses, and application to treatment outcomes research and medical decision making.

Chapter authors examine response shift in various populations, from bereaved caregivers with AIDS to prostate and breast cancer patients undergoing treatment. Written for health care researchers, practitioners, and policy makers, this book casts new light on many intriguing issues in clinical care affected by response shift.

Table of Contents

Contributors

Acknowledgments

Introduction

An Historical Introduction to Response Shift
—Allen Parducci

I. Theoretical Reflections

  1. Integrating Response Shift Into Health-Related Quality-of-Life Research: A Theoretical Model
    —Mirjam A. G. Sprangers and Carolyn E. Schwartz
  2. Response Shift: A Coping Perspective
    —T. Anne Richards and Susan Folkman
  3. Response Shifts in Prostate Cancer Patients: An Evaluation of Suppression and Buffer Models
    —Stephen J. Lepore and David T. Eton
  4. Personal Goals and Response Shifts: Understanding the Impact of Illness and Events on the Quality of Life of People Living With AIDS
    —Bruce D. Rapkin
  5. Discussion: Theoretical Reflections
    —Carolyn E. Schwartz and Mirjam A. G. Sprangers

II. Methodological Pathways

  1. Methodological Approaches for Assessing Response Shift in Longitudinal Health-Related Quality-of-Life Research
    —Carolyn E. Schwartz and Mirjam A. G. Sprangers
  2. Response Shift Effects on Patients' Evaluation of Health States: Sources of Artifact
    —Hilary A. Llewellyn-Thomas and Carolyn E. Schwartz
  3. Measuring Response Shift Using the Schedule for Evaluation of Individual Quality of Life
    —Ciaran A. O'Boyle, Hannah M. McGee, and John P. Brown
  4. Response Shift and Fatigue: The Use of the Thentest Approach
    —Mirjam A. G. Sprangers, Frits S. A. M. van Dam, Jenny Broersen, Litanja Lodder, Lidwina Wever, Mechteld R. M. Visser, Paul Oosterveld, and Ellen Smets
  5. Discussion: Methodological Pathways
    —Mirjam A. G. Sprangers and Carolyn E. Schwartz

III. New Perspectives on Existing Data

  1. Clinical Understanding and Clinical Implications of Response Shift
    —Ira B. Wilson
  2. Helping Others Helps Oneself: Response Shift Effects in Peer Support
    —Carolyn E. Schwartz and Meir Sendor
  3. Discrepancies Between Self-Reported and Observed Function: Contributions of Response Shift
    —Lawren H. Daltroy, Holley M. Eaton, Charlotte B. Phillips, and Matthew H. Liang
  4. Associations Between Health Status and Utilities: Indirect Evidence for Response Shift
    —Leslie A. Lenert, Jonathan R. Treadwell, and Carolyn E. Schwartz
  5. Discussion: Implications of Response Shift for Clinical Research
    —Carolyn E. Schwartz and Mirjam A. G. Sprangers

Author Index

Subject Index

About the Editors

Editor Bios

Carolyn E. Schwartz, ScD, earned a bachelor's degree magna cum laude (1982) in psychology from UCLA, a master's degree in clinical psychology (1985) at the University of Connecticut; and a doctor of science degree (1990) from the Harvard School of Public Health, with an emphasis on behavioral sciences, biostatistics, and immunology/cancer biology. She did her postdoctoral training in multiple sclerosis at the Center for Neurologic Diseases of the Brigham and Women's Hospital of Harvard Medical School. She founded and headed the Behavioral Science Research Program (1993–1999) at Frontier Science and Technology Research Foundation (a not-for-profit research foundation) and was a member of the psychiatry faculty at Harvard Medical School (1995–1999). She is currently an associate professor and the associate director of research in Family Medicine and Community Health at the University of Massachusetts Medical School. A specialist in outcomes research and measurement development, her interdisciplinary and methodological research focuses on understanding what patients can do to have an impact on the course of their disease and their well-being. She is on the editorial board of Psychosomatic Medicine and the International Journal of Behavioral Medicine and is an ad hoc reviewer for numerous journals and granting agencies. She is a Fellow of the Society of Behavioral Medicine and is on the Council of the American Psychosomatic Society. Her publications span the fields of behavioral medicine, health services research, neurology, and oncology.

Mirjam A. G. Sprangers, PhD, earned a bachelor's degree cum laude (1981) in psychology; a master's degree cum laude (1984) in psychological methods; and a doctor of philosophy degree (1989) from the University of Amsterdam, the Netherlands. She has subsequently been a research psychologist at the Netherlands Cancer Institute. She is presently associate professor and vice chair of the Department of Medical Psychology, Academic Medical Center, University of Amsterdam. She coordinates a research line on quality of life and valuation of outcomes that addresses the theoretical and methodological conundrums of health-related quality-of-life and utility research. She is a member of the European Organization for Research and Treatment of Cancer Study Group on Quality of Life and has served as the chair of its Module Development Committee and as a member of its executive committee. She has also served on the board of the European Society for Psychosocial Oncology. She is currently a member of the boards of the International Society for Quality of Life Research, the Dutch Society for Psychosocial Oncology, and the Scientific Council of Social Oncology of the Dutch Cancer Society, and she chairs the Dutch Working Group on Research in Health Status Assessment. She is on the editorial advisory board of the journal Quality of Life Research and is an ad hoc reviewer for a number of other journals and granting agencies. Her publications address the methodological, theoretical, and applied aspects of quality-of-life research primarily in oncology and HIT infection.