Government Relations Update

PCORI releases draft research priorities for public comment

New health research agency puts forward a broad strategy.

The Patient-Centered Outcomes Research Institute (PCORI) has released a draft version of its first National Priorities for Research and Research Agenda and has invited public comment on the document’s content and clarity and on where PCORI should direct its research funding. 

PCORI was established by the Patient Protection and Affordable Care Act of 2010 (the health care reform law) as an independent, nonprofit organization that supports comparative effectiveness research on the prevention, treatment, and management of diseases and disorders.

The draft research agenda is organized around the following priorities:

  • Comparative Assessments of Prevention, Diagnosis, and Treatment Options. The research goal is to determine which option(s) work best for distinct populations with specific health problems.

  • Improving Healthcare Systems. Focuses on ways to improve healthcare services, such as the
    coordination of care for patients with multiple chronic conditions.

  • Communication and Dissemination. Looks at ways to provide information to patients so that they, in turn, can make informed healthcare decisions with clinicians.

  • Addressing Disparities. Assures that research addresses the healthcare needs of all patient populations. This is needed as treatments may not work equally well for everyone.

  • Accelerating Patient-Centered and Methodological Research. Includes patients and caregivers in the design of research that is quick, safe, and efficient.”

Comments can be provided through an online form. The deadline for submitting comments is March 15, 2012.

In addition, PCORI will hold a National Patient and Stakeholder Dialogue on February 27, 2012, in Washington DC.  The event will be accessible by webcast and teleconference and will allow some individuals to provide comments by phone.