Resources for caregivers of diverse populations and specific age groups

Caregivers and Family
Find out what to expect if you become a caregiver for a person with cancer, and get tips for making sure that you take care of yourself as well. From the American Cancer Society.

Care Options
Alzheimer’s Association guide to finding the right Alzheimer’s care.

Caregiving Resource Center
American Association of Retired Persons (AARP) information tools and tips for caregivers.

Caregiver Health
Alzheimer’s Association tips on how to find the care that’s right for you.

Caring.com
For those seeking information and support as they care for aging parents, spouses and other loved ones.

Caring for a Person with Alzheimer’s Disease: Your Easy-to-Use Guide
National Institute on Aging guide for people who care for family members or others with Alzheimer's disease at home.

Centers for Medicare and Medicaid Services
Works to achieve a high quality health care system with better care at lower costs.

Family Caregiver's Guide to Hospice and Palliative Care
United Hospital Fund guide answers questions about hospice care.

Five Wishes
A living will, also available in Spanish, that lets adults of all ages plan how they want to be cared for in case they become seriously ill.

Long-Distance Caregiving: Twenty Questions and Answers
Answers to long-distance care questions, from the National Institute on Aging.

Next Step in Care
Guides to help family caregivers and health care providers work together to plan safe and smooth transitions for chronically or seriously ill patients.

Prepare to Care: A Planning Guide for Families
Tips on how to put together a caregiving plan with your loved ones, from AARP.

Preventing Elder Abuse by Family Caregivers  (PDF, 765KB) 
National Center on Elder Abuse guide for putting together a caregiving plan with your loved ones.

Resources for Children and Teens About Alzheimer’s Disease  
National Institute on Aging list of books, articles, websites and other materials that may help youth cope when a family member or friend has Alzheimer’s.

U.S. Government Caregivers’ Resources  
Find a nursing home, assisted living, or hospice; check your eligibility for benefits; get resources for long-distance caregiving; review legal issues; and find support for caregivers.

Well Spouse Association
Support for husbands, wives or partners looking after a spouse or partner with chronic illness and/or long-term disability.

American Childhood Cancer Organization
Helps families get the facts they need about childhood cancer.

American Diabetes Association
Funds research to prevent, cure and manage diabetes, and delivers services to hundreds of communities.

Challenges and Resilience in African American Grandparents Raising Grandchildren: A Review of the Literature with Practice Implications  (PDF, 727KB) (Tang, Jang, and Copeland, 2015)
Literature review on grandparents raising grandchildren, focusing on caregiving challenges and resilience in African American grandparent caregivers within a socio-cultural context.

Compassion Can’t Wait
Helps single parent families with catastrophically and terminally ill children in financial crisis.

Coping with Cancer: About Children with Cancer
Information from the National Cancer Institute about managing the physical and emotional effects of cancer and its treatment.

CureSearch
National non-profit foundation that researches the cure for children’s cancer.

Easter Seals’ Resources for Children with Disabilities
Provides programs and services to children and youth with physical disabilities.

Fair Start Training Program
Improve your professional caregiving skill for young children in public care.

Grandfamilies.org (ABA Center on Children and the Law, Generations United, Casey Family Program)
Serves as a national legal resource in support of grandfamilies within and outside the child welfare system.

Grandparents Raising Grandchildren article series (University of Florida IFAS Extension)
Provides information for grandfamilies on topics including characteristics of strong families, a crash course in child development, financial, health care and educational assistance, and tips for taking care of yourself.

Grandparents Raising Grandchildren
Find grandparent programs in your state and get information about benefits and assistance.

Guide for Grandfamilies (AARP)
Provides tips, tools and resources to the services and support you need to take care of yourself and your family.

Kinship Care Resource Kit
Resource from the Children’s Defense Fund provides information on topics such as cash assistance, child care and education programs, health care and other issues important to relative caregivers.

Muscular Dystrophy Family Foundation
Provides financial assistance, quality programs and services for the Muscular Dystrophy community.

Parents with Disabilities
Information, support and resources for parents with disabilities.

Pediatric Oncology Resource Center
Lists support organizations (non-profits) for childhood cancer. Also organized by specific cancers and types of support.

SuperSibs
Empowerment for siblings during their family’s battle against childhood cancer.

Veteran Parenting Toolkits: Together Building Strong Families (Oklahoma City VA Medical Center Family Mental Health Program)
Five age-based parenting toolkits for Operation Enduring Freedom and Operation Iraqi Freedom veterans and their partners.

When Families Grieve
Sesame Workshop educational tool that helps kids summon the strength to heal after the death of a parent.

A-Anon
Support for friends and families of problem drinkers.

Adult Children of Alcoholics World Service Organization
Support for children of alcoholics, codependents and individuals with addictions.

Center on Addiction and the Family
Focused on the overlap of family issues with addiction, treatment and recovery. A unit of Phoenix House.

Families Anonymous
Includes parents, grandparents, siblings, spouses, significant others, other family members and friends of those with a current, suspected or former drug problem.

Nar-Anon
Emotional support for individuals concerned the addiction problem of someone else.

Protecting Children in Families Affected by Substance Use Disorders
This manual examines parental substance use disorders their impact on children and how to best support families affected by substance use disorders.

Substance Abuse and Mental Health Services Administration Behavioral Health Treatment Services Locator
For persons seeking substance abuse, addiction or mental health treatment facilities in the United States or U.S. territories.

AbleData
Comprehensive information on products, solutions and resources to improve productivity and ease with life’s tasks. From the National Institute on Disability and Rehabilitation Research.

AgrAbility Project
Helps agricultural workers with disabilities succeed in rural America. From the U.S. Department of Agriculture.

Arc of the United States
For people with intellectual and developmental disabilities.

Center for Technology for Accessible Technology
Resources for computer access for persons with disabilities.

Center on Technology and Disability
Assistive and instructional technology supporting learners with disabilities.

Easter Seals
Provides programs and services to children and youth with physical disabilities.

Employed Parents Caring for Children with Disabilities
Advice for parents balancing work and challenging family responsibilities. From the Sloan Work and Family Resource Network.

Families with Special Needs: Caregiving Tips
Centers for Disease Control general caregiving tips and links to information on specific health topics.

The National Disability Rights Network
An organization for the federally mandated Protection and Advocacy Systems for people with disabilities.

National Multiple Sclerosis Society
Mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by multiple sclerosis.

Paralysis Resource Center
The Christopher and Dana Reeve Foundation Resource Center includes information for people living with a spinal cord injury, mobility impairment and paralysis.

PLAN -Planned Lifetime Assistance Network
Focused on the planning needs of families with adult children having lifelong disabilities.

Through The Looking Glass
Research, training and services for families in which a child, parent or grandparent has a disability or medical issue.

Circle of Care: A Guidebook for Mental Health Caregivers
National Alliance for Caregiving guide for unpaid friends, family and neighbors who care for someone with a mental health condition with fact sheets intended to assist these caregivers with finding help for specific challenges.

Older Adults With Schizophrenia
University of California at San Diego article discusses important differences between early- and late-onset schizophrenia, and tips for caregivers.

National Alliance on Mental Illness
Grassroots mental health advocacy organization dedicated to building better lives for Americans affected by mental illness.

The National PLAN Alliance
Focused on the planning needs of families with adult children having lifelong disabilities, including mental disorders.

Respite for Families with Children Experiencing a Serious Emotional Disturbance
Factsheet from the ARCH National Respite Network and Resource Center includes family and program considerations for respite providers.

Acria Center on HIV and Aging
The ACRIA Center on HIV & Aging investigates, defines and seeks to address the unique needs and challenges that older adults of diverse populations living with HIV face as they age through research, education and advocacy.

Graying of AIDS
Portraits and oral histories of both long-term survivors and older adults who contracted HIV later in life in addition to HIV/AIDS information.

Legal Issues for LGBT Caregivers  
How to create an estate plan, manage Medicaid and Medi-Cal, and other tools from the Family Caregiver Alliance.

LGBT Caregiving  
Frequently asked questions about Alzheimer’s disease, federal and state assistance programs, the Family and Medical Leave Act, nursing homes and other caregiving concerns.

National Resource Center on LGBT Aging
Provides technical assistance  to improve the quality of services and supports offered to LGBT older adults.

The Coming Home Project
Provides care, support, education and stress management tools to Iraq and Afghanistan veterans, service members, their families and their service providers.

Mental Health and Related Resources for Assisting Service Members, Veterans and Their Families
A list of resources prepared by APA.

National Resource Directory
Department of Defense resource connects wounded warriors, service members, veterans, their families and caregivers with those who support them.

Operation Enduring Families: Information and Support for Iraq and Afghanistan Veterans and Their Families
This 5-session family education and support program is for veterans who have recently returned from a combat theater and their families. An Oklahoma City VA Medical Center Family Mental Health Program.

Operation Purple Program (National Military Family Association)
Empowers military children and their families to develop and maintain healthy and connected relationships.

Post-deployment Stress: What Families Should Know, What Families Can Do (PDF, 827.7KB)
Guide for families supporting service members who have experienced trauma in Afghanistan and Iraq.

Talk, Listen, Connect: Deployments, Homecomings, Changes, Grief Educational Materials for Families
Sesame Workshop resource for military families with children who are dealing with deployment of a family member.

TBI Family Caregiver Curriculum
Source of information and support for caregivers of service members and veterans with moderate to severe traumatic brain injury. From the Defense and Veterans Brain Injury Center.

Toolkit about Military Teens (National Military Family Association)
Rates of anxiety among military children — as well as emotional and behavioral difficulties — are higher than the national averages. This toolkit can help.

U.S. Department of Veterans Affairs Community Provider Toolkit
This toolkit supports the behavioral health and wellness of veterans receiving services outside the VA health care system.

U.S. Department of Veterans Affairs National Center for PTSD
Dedicated to research and education on trauma and post-traumatic stress disorder (PTSD).

VA Caregiver Support  
Learn about the services and support available to family caregivers of veterans. From the Department of Veterans Affairs.

Veterans Health Council
Improving veterans’ health through information and education.

Wounded Warrior Project
Family support services for wounded warriors and their caregivers.

Conversations Matter
National Institute of Nursing Research at National Institutes of Health fast facts sheet for families of children in palliative care.

Finding Meaning in Life and in Death: A Call to Culturally Competent Action
This blog examines how current psychological treatment at end of life can have a cultural bias and why cultural competency at end of life is important.

A Good Death is an Important Part of a Good Life
This blog discusses the complexities around how and why some patients choose assisted dying and the controversy surrounding it.

How psychologists can bring their expertise to end-of-life care
APA Monitor on Psychology ^® CE Corner (November 2017). APA resolution calls for the association to promote and support psychology’s involvement in palliative care and end-of-life issues.

Identifying and addressing the needs of adolescents and young adults with cancer: Workshop summary
Workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care.

Speaking of Psychology: Making talking about death easier
In this podcast, Brian Carpenter, PhD, talks about why it’s important to have end-of-life decision conversations and how to approach these discussions successfully.

Cada Paso del Camino (Every Step of the Way)
A video of the day-to-day experiences of Latino family caregivers, as they share the challenges, hardships and solutions that come with caring for loved ones.

Caregiver Support
Tips to reduce stress and self-care, from the National Women’s Health Information Center.

Caregivers of Ethnic Elders
Eight tips for caregivers from the Ethnic Elders Care Network.

Caregiving Resources Portal
National Resource Center on LGBT Aging resources include a caregiver overview, radio show interviews and other publications.

Fact Sheets for Caregivers in Spanish and Chinese
The Family Caregiver Alliance illuminates caregivers' daily challenges to better the lives of caregivers nationally, and provide needed assistance.

Family Caregiver's Guide to Hospice and Palliative Care
United Hospital Fund guide answers questions about hospice and palliative care. This resource is also available in Spanish, Chinese and Russian.

Family Caregiver’s Guide to Hospital Discharge Planning
Spanish language guide includes help for family caregivers who are supporting or managing the health of a loved one.

Hispanic Family Caregiving Report in English and Spanish
This report reviews rising health care costs, physical, emotional and financial support for families who are caregivers.

Meeting the Needs of Diverse Family Caregivers
Suggestions for addressing the needs of racially and ethnically diverse family caregivers. From the American Association of Retired Persons Public Policy Institute.

Native Elder Caregiver Curriculum
National Resource Center on Native American Aging tool to assist family and community members.

Women and Caregiving: Facts and Figures
The Family Caregiver Alliance provides facts about women’s long-term care needs, minority and low income caregivers, as well as support systems for women caregivers.

Alzheimer’s Foundation of America Teens for Alzheimer's Awareness
Seeks to raise awareness of the disease and educate and support teens and their families.

American Association of Caregiving Youth (AACY)
Provides support to youth caregivers and their families by connecting healthcare, education and community resources.

Caregiving Youth Institute
Focuses on advocacy, research and education.

Caregiver Youth Project
This model program of the American Association of Caregiving Youth offers in-school skills building groups, out-of-school activities, college guidance, tutoring/mentoring and collaboration with community partners to provide resources for the entire family.

Dementia Teaching Resources
Ideas and tools for teachers and students from the Alzheimer's Society.

Keep S'myelin
A fun resource for kids about multiple sclerosis, from the National Multiple Sclerosis Society

Study on Children of Seriously Wounded Service Members
Describes the needs of children of service members who have been seriously wounded in combat, as well as the programs and services to support them.

The Hidden Population of Caregiving Youth in Our Schools
An article from the APA Public Interest Directorate’s blog   Psychology Benefits Society   on the challenges caregiving youth may face, both at home and at school, and how schools can identify and support these students.

When Your Parent Has Cancer: A Guide for Teens
Information on dealing with changes and stress, finding support, treatments and side effects, and life after treatment.

When a Parent Has MS: A Teenager's Guide
A pamphlet the National Multiple Sclerosis Society with information about MS and how it affects family dynamics, plus advice for teens on expressing their concerns and coping in trying times.

Who are Young Carers?
Carers Trust provides information designed to help professionals work more effectively with young carers. It covers everything from identification of young carers, through to the transition to adulthood.