My Life By Me

My Life By Me is just for you. It's not a book you read, but one you create. Every page is a space to tell your story — who you are, where you came from, and what you're thinking. It can help you work through questions about your illness and understand your thoughts, feelings, and experiences that may be difficult to put into words.

For parents and other adult caregivers, a comprehensive guide (PDF, 390KB) is available and includes additional information on child development, grief, and facilitating difficult conversations and open communication for terminally ill children and their families.

Beth Barber, PsyD, works in the psychology department of the Children's Hospital of Los Angeles with the exceptional children and families who have inspired this book.