Given the complexity of the issue and the difficulty in changing paradigms, how can the field increase transparency and inclusion of those with these lived experiences while maintaining scientific, clinical, and ethical integrity? Leaders in the area share these thoughts.
Take steps in your setting
Because there is so much at stake, dealing with stigma on your professional turf is probably more difficult than in any other setting. However, there are effective ways to start facilitating more open communication and eventually more supportive policies, these psychologists said.
In graduate programs, simply talking with colleagues informally is an important first step, Devendorf said. It needs to be ongoing, though: “It’s going to take concerted efforts of talking to students, talking to faculty, and integrating people with their own lived experiences into these efforts,” he said. “Otherwise, we’re just relying on behind-the-scenes mentoring and advice.”
If you’re in a position of authority at your institution, consider adopting strategies and policies that encourage transparency, Victor added. On the first day of her introduction to psychopathology class, for example, she starts by telling students that some in the room will have undoubtedly experienced some of the conditions and difficulties described. “So, when we talk about these conditions,” she tells them, “let’s make sure we think about our language in ways that wouldn’t make us feel embarrassed if we found out our classmate had that condition.”
She also encourages faculty to be transparent in their requirements for personal essays from graduate school applicants. On her website, for example, she spells out that it’s OK for applicants to share or not share, and they won’t be penalized either way.
Seek support
While it remains difficult for many psychologists and trainees to find support for disclosure in their institutions, it’s important to know that such places do exist. Cassie Boness, PhD, a research assistant professor and substance use stigma researcher at the University of New Mexico (UNM) Center on Alcohol, Substance Use, and Addictions, for example, praises the progressive atmosphere at UNM, where faculty welcome research that incorporates lived experience. Similarly, Michaela B. Swee, PhD, a staff psychologist and director of clinical training in the Trauma Continuum of Care at McLean Hospital in Belmont, Massachusetts, said she has appreciated professional spaces where self-disclosure and personal sharing are accepted and encouraged to the extent that individuals feel it is helpful and pertinent to their work. This includes settings like supervision for trainees and consultation meetings for professional peers.
“I have experienced a collection of these settings where self-disclosure feels welcome and safe,” she said. “When colleagues feel safe enough to open up with each other, it can really shift the tone. You start to hear other voices saying, ‘I can relate,’ or, ‘I’ve experienced a similar kind of struggle.’ That can enrich the relationships and trust colleagues have with one another, as well as deepen the work we do with our clients.”
If you can’t find support in your institution, seek it elsewhere, Hinshaw advised. “When you form solidarity with and get support from psychologists in the same situation as you, it’s an antidote to self-stigma,” he said.
Mind your language
In terms of clinical practice, as mentioned, it’s important to discuss patients respectfully with colleagues—not only because it is professional and ethical to do so, but because patients can sense it when you look down on them. Talking in pejorative ways about patients can also build and perpetuate stigma among colleagues, especially if the symptoms you’re maligning are some that your colleagues are hiding. Instead of using judgmental terms when talking about patients, work to use language “that is objective, descriptive, and based in a more compassionate understanding of why people act the way they do,” Nauphal advised.
Address stigma directly with patients
On a related note, think about ways to directly address the issue of stigma with patients, Nauphal suggested. One way could be to judiciously and deliberately use self-disclosure to communicate a sense of shared humanity. For example, you could say that you, too, have struggled with difficult emotions and have found that the same therapy skills you are sharing with them have helped you, too. Another powerful strategy is having open conversations with them about stigma, including assessing their own experience of stigma and working to reduce self-stigma as an important treatment goals.
Expand your research lens
On the research front, psychologists may be discouraged from conducting so-called me-search—research that focuses on a topic they have a personal connection to, such as mental health conditions, race, gender, or sexual orientation. Again, the field appears to hold a double standard in this regard: While the practice is ostensibly frowned upon, 55% of Devendorf’s and Victor’s representative sample of psychologists and trainees said they have conducted such research.
What’s more, there’s no reason such research can’t be rigorous, these psychologists maintained. After all, mental illness is a main topic of study for many psychologists, and any study worth its salt requires many more participants than an N of 1. Moreover, personal experiences with mental health conditions can add richness and depth to the work and raise research questions that might not otherwise be considered, they said. To name just one example, in the past, the field has held that NSSI is the sole province of women with borderline personality disorder who have serious histories of childhood trauma, said Victor. “But a lot of my friends in high school and a lot of people struggling with self-injury do not fit that description,” she said.
Participatory action research—which includes people with lived experiences as cocreators and not just as participants—is another potential way to help destigmatize mental illness and empower those with different conditions, said Stephen P. Lewis, PhD, a professor of psychology at the University of Guelph in Ontario, Canada, who studies NSSI and is open about his own experiences with the behavior and his own mental health difficulties. Lewis is facilitating a filmmaking project based on participants’ personal experiences with NSSI. The participants are creating the videos themselves and will eventually screen the films with target audiences, hosting question-and-answer sessions at the end to gauge audience reactions. “We see it as a potentially formidable way to address stigma.”