Health-Related Disorders in Children and Adolescents

A comprehensive revision of a critical resource for school-based professionals tasked with providing care for children’s disability conditions, their social-emotional health, and their educational needs. 

The volume of information on health conditions affecting children and adolescents has grown and become more complex over the last several decades, making it a challenge for school-based professionals to support children's learning and growth. Now in its second edition, Health-Related Disorders in Children and Adolescents discusses how school professionals can be effective partners in collaborative care teams for the more than 15 million school-aged children experiencing medical conditions.

With chapters written by experts from a range of disciplines in psychology and featuring the latest genetic research, the work is organized around major body systems. Each chapter systematically covers etiology, symptoms, and outcomes for children with the condition, and recommends science-based interventions school professionals can carry out. This edition emphasizes care coordination among families, and medical, behavioral health, and educational professionals.

Series Foreword
Julia Ogg

Preface
LeAdelle Phelps as transcribed by Melissa Bray

Part I. Introduction

• Chapter 1: Introduction to the Second Edition
  Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray
• Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children and Families
  Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah

Part II. Blood, Cardiovascular and Circulatory System Disorders

• Chapter 3: Overview of Circulatory System Disorders
  Jeff Bostwick, Clark R. Bray & Heather Kwolek
• Chapter 4: Cardiac Disorders
  Stewart W. Ehly & Noel Estrada-Hernandez
• Chapter 5: Childhood Leukemia
  Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern & Alyssa Perri Elias
• Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome
  Priscilla H. Duong & Hiroko Tanaka
• Chapter 7: Hemophilia
  Mickey Randolph & Ethan J. Schilling
• Chapter 8: Human Immunodeficiency Virus
  Tiffany Chenneville & Kamesha Gabbidon
• Chapter 9: Noonan Syndrome
  Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa Scogin
• Chapter 10: Sickle Cell and other Anemias
  Linda W. Morse, Melanie C. Morse & Sarah E. Bills

Part III. Central Nervous System Disorders

• Chapter 11: Overview of CNS Disorders
  Ivette Merced
• Chapter 12: Adrenoleukodystrophy
  Harvey Switzky, James P. Van Haneghan & Abigail Baxter
• Chapter 13: Agenesis of the Corpus Callosum
  Krystal T. Simmons, Bianca S. Watkins & Sherine Presley
• Chapter 14: Angelman Syndrome
  Sara S. Frye & Allison Fairchild
• Chapter 15: Autism
  Christine L. Cole & Alana Telesford
• Chapter 16: Cerebral Palsy
  Sai Sudha Aravala, Adeline Bray & Karen Cross
• Chapter 17: Cri-du-Chat
  Phyllis S. Ohr
• Chapter 18: Down Syndrome
  Nicholas W. Gelbar
• Chapter 19: Epilepsy
  Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar
• Chapter 20: Hereditary Ataxia
  Taylor-Kristen Myers
• Chapter 21: Mitochondrial Disorders
  Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio
• Chapter 22: PANDAS/PANS
  Kandace M. Hoppin & Patricia Rice Doran
• Chapter 23: Prader-Willi Syndrome
  Moira Wendel & Julia Ogg
• Chapter 24: Rett Syndrome
  Nicholas W. Gelbar
• Chapter 25: Spina Bifida
  Fay Roseman & Agnes Shine
• Chapter 26: Williams Syndrome
  Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg

Part IV. Digestive System Disorders

• Chapter 27: Overview of Digestive System Disorders
  Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks
• Chapter 28: Celiac Disease
  Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick
• Chapter 29: Hirschsprung's Disease
  Craig L. Frisby
• Chapter 30: Inflammatory Bowel Disease: Crohn's Disease and Ulcerative Colitis
  Stevie Puckett-Perez & Chelsea Vaughan
• Chapter 31: Phenylketonuria
  Julia Ogg & Daniel V. Strissel

Part V. Endocrine & Reproductive System Disorders

• Chapter 32: Overview of Endocrine & Reproductive System Disorders
  Cindy Chin, Graciela E. Silva & Mark Wheeler
• Chapter 33: Conditions Associated with Growth
  David E. Sandberg & Kristina I. Suorsa Johnson
• Chapter 34: Congenital Adrenal Hyperplasia
  Allison Fairchild & Madison Preece
• Chapter 35: Klinefelter Syndrome
  Kristina I. Suorsa Johnson & David E. Sandberg
• Chapter 36: Thyroid Disorders
  Samantha Coyle & Brooke Stettler
• Chapter 37: Turner Syndrome
  Kristina I. Suorsa Johnson & David E. Sandberg
• Chapter 38: Type 1 Diabetes
  Natalie A. Larez & Michelle M. Perfect
• Chapter 39: Type 2 Diabetes
  Stihlyn Chamberlain & Savina Maria Bello

Part VI. Respiratory System Disorders

• Chapter 40: Overview of Respiratory System Disorders
  Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo
• Chapter 41: Asthma
  Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie
• Chapter 42: Cystic Fibrosis
  Jeanette Smith Phoenix & Keiko Aoyagi
• Chapter 43: Cytomegalovirus
  Maryann Santos
• Chapter 44: Sarcoidosis
  Adeline Bray, Sar Aravala & Craig Schramm

Part VII. Musculoskeletal Disorders

• Chapter 45: Overview of Musculoskeletal Disorders
  Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea
• Chapter 46: Achondroplasia
  Cynthia A. Riccio & Anita Sohn McCormick
• Chapter 47: Charcot Marie Tooth Disease
  Jennifer Tucker & Meghan Nickels
• Chapter 48: Juvenile Idiopathic Arthritis
  Rebecca J. Tipton & Eric L. Robinson
• Chapter 49: Marfan Syndrome
  Brittany A. Dale & David E. McIntosh
• Chapter 50: Muscular Dystrophies
  Jennifer Tucker & Megan Jeune
• Chapter 51: Osteogenesis Imperfecta
  Kelly N. Clark & Christine K. Malecki
• Chapter 52: Sotos Syndrome
  Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter, Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon, & Adeline M. Bray

Part VIII. Mixed/Multisystem Disorders

• Chapter 53: Overview of Multisystem Disorders
  Cynthia A. Riccio
• Chapter 54: CHARGE Syndrome
  Timothy S. Hartshorne & Lillian J. Slavin
• Chapter 55: Cornelia de Lange Syndrome
  Emily M. Jimenez & Cynthia A. Riccio
• Chapter 56: Fragile X Syndrome
  Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina Petrullo
• Chapter 57: Lysosomal Storage Disorders
  Allison Fairchild & Melina Islas
• Chapter 58: Mucopolysaccharide Disorders
  Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect
• Chapter 59: Neurofibromatosis
  Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio
• Chapter 60: Pediatric Cancer
  Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa Hoefler, Kerrilyn Surdi, Lydia Rumpf, & Alyssa Perri Elias
• Chapter 61: Smith-Magenis Syndrome
  James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky
• Chapter 62: Sturge-Weber Syndrome
  Emily M. Jimenez & George W. Hynd
• Chapter 63: Tuberous Sclerosis Complex
  Cynthia A. Riccio & Huilin Linda Sun
• Chapter 64: Conclusion: Looking Back and Forward
  Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio

Appendix: Checklist for Developing Plans for Students with Health-Related Conditions

Index

About the Editors

Michelle M. Perfect, PhD, is a professor in the School Psychology Program at the University of Arizona. Her research focuses on the intersection of physical and mental health, with a particular focus on the impact of sleep and pediatric chronic illnesses on school, mental health, and neurobehavioral functioning. Dr. Perfect also engages in training and service activities that prepare school psychologists to work with multiple systems of care (school, family, hospitals, child welfare) to address the educational and mental health needs of youth and families, particularly those from marginalized populations and/or have experienced adversities.

Cynthia A. Riccio, PhD, is professor emerita in the School Psychology Program at Texas A&M University and at the Texas A&M Institute of Neuroscience (TAMIN). Dr. Riccio's primary research interests include learning disabilities, ADHD, neuropsychology, and individual assessment. She retired in August 2020.

Melissa A. Bray, PhD, is a professor and the director of the School Psychology program within the Neag School of Education at the University of Connecticut. She is licensed as a psychologist in the State of Connecticut, holds national certification in school psychology, state certification in school psychology, and licensure in speech language pathology. Her research interests are in the area of interventions for communication disorders—mainly stuttering and selective mutism—mind body health, integrated behavioral health care, and physical health and wellness, especially in the areas of asthma and cancer.

This volume is impressive in its organization, readability, and coverage of a wide range of common and uncommon health conditions. The inclusion of practical, evidence-based medical, psychosocial, and academic interventions is especially useful. This is a highly valuable resource for practitioners, trainers, and students in school psychology and other educational professions.
—Thomas J. Power, PhD, ABPP, Professor, School Psychology in Pediatrics and Psychiatry, Children’s Hospital of Philadelphia; Perelman School of Medicine at University of Pennsylvania, Philadelphia, PA, United States

This is not just another summary of facts: It is a sourcebook for providers and researchers to further explore topics some have never heard of before. This is what I consider a true contribution to the field of psychology.
—Elaine Clark, PhD, Professor, Educational Psychology, University of Utah, Salt Lake City, UT, United States; Fellow, American Psychological Association

The second edition of Health-Related Disorders in Children and Adolescents is an outstanding new volume and a worthy tribute to Dr. LeAdelle Phelps’s classic text. The tone and focus of the book support the role of psychologists and educators in interdisciplinary coordination and consultation for children and adolescents with medical issues. Drs. Perfect, Riccio, and Bray have brilliantly modernized, reorganized, and updated an important text in pediatric school psychology.
—Steven R. Shaw, PhD, Associate Professor, Department of Educational and Counselling Psychology, McGill University, Montreal, QC, Canada